Hello everyone, I wanted to know if anyone else has lost their voice with all the coughing and stuff and if it comes back quickly or you are stuck with it? I haven't been able to talk properly for a few days now and I'm getting a bit worried.
Lost voice and cough were my main symptoms, and my voice became very one dimensional and raspy no variation in tone and difficulty putting sentences together as I didn't have enough breath - massive effort and just kept getting worse until I had radiotherapy to my chest 3.5 months after first treatment.
As my various tumours have reduced, so my voice has returned to about 80% normal - I can even carry a tune (after a fashion...).
You should remember that different things happen to different people, even if they have the same or very similar issues. I would strongly advise that you speak to your onc and/or lung specialist nurse, they may be able to tell you whats what...
You've described the same thing.....I had a Stent fitted a week or so ago too though and they had to laser some of the tumour from my airway to help me breath so I guess not being able to talk is a small price to pay, I am grateful to you for letting me know I'm not the only one to experience this and someone else understands the shock of it and I will take your advice and 'discuss' it with one of my care team - I just hope one of them speaks snake!
Take a notepad with your pre-written questions or do it by text or email and no need for snakey voice and the huge effort required to say a few words and unbelievable anger when someone, ANYONE says, "Excuse me, I didn't hear..." GRRRrrrrhhhhHHH!!!
I know we all experience these things in different ways, but please may I urge you to talk to your care team if you are going hoarse - there is a possibility you may have a blocked artery ..... the phone team did not recognise it, or the paramedics - luckily my GP paid me a visit and sent me to A&E straight away where they found I needed to have two stents to open up the artery to the heart, apparently it is quite unusual - not trying to scare you, just in case x
