Covid pain

Hi Chelle

Very unlike you indeed! Did you have to take time to find where the start a new thread button was?

I think this is a very good idea and it does help that people can express themselves. It also means those that do not want to read about it can easily not read anything about it, as it will all be in place.

I had my brief rant before but.

Like you I followed the same idea of limiting the amount of time reading about it. I check our local figures once a day and watch the updates on how we move forward. I avoid reading the comments as some people's stupidity triggers me. When that happens, I choose to mainly put down the site and back away (not 100% success rate, but 95%).

I also on a certain site which many are on, I opt to snooze 'friends' for 30 days that are either in my eyes, selfish, negative, spreading complete myths, or consistently posting memes about it.... so I do not have to see it when I go on. Unfortunately they reappear 30 days later and often they are still doing it so I select to snooze them again for another 30 days. That way I can avoid conflict with them.

I am the same about avoiding confrontation with neighbours too. It is hard to ignore when you feel they are basically spitting at vulnerable people and the lovely key workers and just doing their own thing to please themselves.

Thanks Chelle.

You know me too well Gina, I did have to look to find the right button

I sometimes wish we could snooze people in real life, that would be good wouldn’t it  

the snooze button is the best invention ever! Including on the alarm clocks

Well I am happy you did start this, as I have a Q About this maybe I could dig brains about, this thing attacks your lungs right? So us with the lung cancer are very f-d as with every person with breathing problems if we god-forbid get this, so if it stays around and people just get on with life, we never can? 

Hope this don't come across as selfish for the other types of cancer, by the way Gina they said we can now swim in the sea and lakes, so put the kettle on i am on my way over.

Ray

The way I see it Ray is that this virus is so unpredictable that nobody really knows how it will effect us. Some healthy people ( like Boris ) really suffered and some have died. Other older people have recovered , like a 103 year old I was reading about earlier.  When I spoke to my oncologist she actually told me that this virus has not effected her cancer patients in the way she thought it would, but is that because we are shielding? It’s hard to say. All I can say is I will do all I can do, to keep me and my family safe. It certainly has made us realise that although our life is different since my diagnoses, it was a good life, and something we want to get back too. 

Excellent idea for a thread.  I find myself shouting at the tv quite often when people say stupid things!! I’m lucky with my friends and family they don’t say anything to annoy me.  
I am shielding as much as I can when there are 6 in the house and and 1 is a full time key worker.  You’ll often find me with rubber gloves on bleaching surfaces and door handles these days!  
I like others are finding the prospect of shielding indefinitely very hard to cope with.  Will the remaining time I have on this Earth be spent shielding? I am feeling really well atm will my time when I am without pain and with energy be spent in the house unable to eat with my family hug my lovely children - I say children they are 22, 20, 18 and 16 so not tiny!  These are my dark thoughts and then I push them to the back and enjoy the time I’m having because they’d all normally be out socialising but instead they are stuck with me! So it’s not all bad but I do miss my siblings and my friends.  
Anyway monologue over really just wanted to say good idea! X

No matter what age our children are, they are still our babies. I’m missing my girls so much, but glad I have my youngest here with me.

My neighbour who had people come and stay, packed her car last weekend and has gone off on her holidays. It has been lovely and quiet without them here, but it makes me so mad that some people really think that this doesn’t effect them, and they can do what they like. 

A lot of my thoughts their DITR and Chelle. So Exasperating. I will copy and paste my rant from the other day about Covid, so it's all in one place. 

I have just seen that they are planning to organise two mass gatherings over here tomorrow to protest about the lock down....

Below is a copy and paste from my own thread.

With Jersey they are already lifting lockdown, the started a few days ago.... unfortunately I am quite furious about it. 

They are going what they call phase 4, phase 3, phase 2 then phase 1.

Phase 4 - Means you can leave your house for 4 hours a day, and can meet two people that you do not live with outside keeping 2 meters apart. This was done 2nd May.

Phase 3 - Means 6 hours a day and meet 5 people a day you do not live with outside. Some large retail outlets can reopen and restaurants with outside seating that can socially distance can re open.  This was done 11th May.

So we seem to be rushing through them without waiting to see what happens. Our Nightingale hospital officially opened Monday 11th May.

I thought being an Island they would be aiming to eradicate it on the Island by quarantining everyone as whilst a small populated Island we had cases and we did shut down (in my eyes too late) that if everybody obeyed they could contain it and stop the spread. It did seem to be working and they were getting on top of it and it was almost fizzling out....

Before lifting the lockdown (with minimal testing and only testing travelled people with symptoms). We had 2,532 negative 286 positive and sadly 24 deaths here. 197 recovered. So only about 65 tested positive active cases. Some were in hospital I would imagine some may be in care homes, so very few just self isolating at home and all but non essential travel off island, could return to completely normal for all if stuck to it for a couple of more weeks or so.

Now I believe the daily figures will show the figures rise again and get their 'peek', rather than hoping we had already had our peek and we were stamping on the ashes to ensure it goes.

So now, they have decided they want heard immunity again (if that is even effective or works) and keep banging on about the economy and mental health. People twitching after not even 5 weeks of lockdown. In my eyes they gave in to peer pressure and have already lifted to phase 4 and now phase 3 already a few days later, rather than waiting to see what the first lift did. So disheartening.

They also spoke about antibody testing too, they did a few tests over the weekend a week and a half ago. They were supposed to then role them out a lot more (as I was hoping to get one) but now they have also put the brakes on that too.

I was hoping to get a test as after I believe my 3rd cycle of immunotherapy (so mid March) I lost my sense of taste and smell. I thought that was a weird side effect of the immunotherapy and even more odd that I hadn't had that on either of the first two. It cleared after a few days... and not had it since.... then later on they said it can be a sign of Covid. So now I wonder if I have already had a very mild exposure to it already and was hoping to get tested to see.

They finally clarified those they consider severely vulnerable, lung cancer and immunotherapy came on their list. For those that are severely vulnerable are simply told to remain shielding (with no end in site for us)…. so not a damn is being given for us, or for our mental health by the government....

If herd immunity does work great.... but some severely vulnerable may not have a long enough life expectancy to see any benefit of herd immunity or a vaccine materialising. Sorry strong words there, but I felt I had to be honest with how this was making me feel and how once again we are pushed aside and forgotten about. I would love to enjoy what will very likely be my last spring/summer, rather being told to shut myself inside, with no garden, alone, not allowed friends/family to see and only leave for treatment. No one wants to live their twilight time under those conditions do they?

So who want's a laugh...

States of Jersey Government sent me a letter on 13 May to tell me to shield for a further 12 weeks at home and not leave my house except for medical appointments... takes me to 4th August.

I sent them a message on 19th May to ask what they are planning to do with the people they are telling to shield indefinitely as I need to get back to work. They told me to apply for Short term incapacity allowance (which I already have as been signed off to shield at home as I wanted to go back to work in March).

So then they send me another letter 22nd of May as they have stopped my Short term incapacity allowance from 3rd May and I must return to work and carry on paying social security contributions/taxes including long term care tax... (long term care tax is contributing to care homes for when we are elderly and cannot afford them, if you have a property they expect you to sell it and use all savings before qualifying for this.... but I'm 36 and an incurable.... do they really expect me to keep paying for this.. sweet they think I will live another 40+ years to perhaps qualify for this). Our hospice is run by charity funding not tax funding.

I can apply for Long term incapacity allowance which is a whopping £11.13 - £222.53 per week if I get approved for it... might be able to pay for tea bags and milk and if lucky some biscuits to dunk in it from that fortune.

One of the questions is can I travel to the medical board meeting (I know it's a standard trick question, as if you say yes they rub their hands together and slash how much you can get approved for) but it's a double trick question now.... so I will answer truthfully no, you told me only leave my house for necessary medical appointments and I can't let anyone into my house that I do not live with.... 

I really don't envy the person they ask to assess me... I will absolutely rip them over their system and ask them lots of medical questions which I know full well they cannot answer for me in the hope I will bore them off.

You really couldn't make it up. I'm to not go to work but I must go back to work #blurredlines

Hi Ginajsy,my situation ia forcing me go back to work even I am still having weekly chemo.My husband has been furloughed and no sign of yet going back to work and now they are talking to cut more mine to 60% and 20% should the employer to pay.I am off sick and on Universal credit since last year.He pays the rent and thats all and I pay the bills from benefits so that leaves us with almost nothing.

So I dont shield anymore my boss agreed with light duties and office work only so going back for 2 days in week and then Fridays chemo.What can I do?I dont want to end up homeless and hungry

But I am quiet happy to go back to work to be useful I cant do this lockdown anymore.My onco made a fuss about it but my GP said its ok.My mental health is suffering so much.And I will be honest I am stage 4 has nothing loose anymore.Except exhausting chemo they have no other treatment for me so at least if I work i can feel bit normal.

Janet