Still no results from scans....

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My husband had his CT & MRI scans nearly 3 wks & this waiting as now got to the point, hes not sleeping. I just walked into the lounge & hes crying.

I just dont get why they make patients suffer this wait, they were quick enough with the diagnosis.

His 5th treatments due this Thursday when he as bloods & sees oncologist. She is aware ofvthe awful anxiety hes gone through since diagnosis & now waiting on scan results & said she would get results back for his next asap, to help. Well that hasnt gone to plan, as we've heard absolutely zilch.

But tomorrow I'm ringing to chase up scans, as by Thursday he'll be mentally crushed & TBH I'm not coping.

I've gone onto the Marsden site to check any results & everythings empty. I keep telling myself & him, no news is good news surely, but who knows!

His walking is awful, due to the knee pain since the fall & now suspected oelsteoarthritis in knees, still waiting for those x rays to come back. I think in his mind the whole time cancers spread more, treatments not working.

So tomorrow I'm ring everyone, GP, Marsden basically anyone to get some answers, as this is a merry go round of hell.....just had enough, no end game of this living daily hell..

  • Sorry for having to wait for scan results..the anxiety is overwhelming and it triggers other symptoms in me. My way of coping is knitting playing games with my husband and spending time with friends.  Keep busy as much as physically possible.  The still of the nights are the worst waking up and obsessing about where is the cancer in my body. I feel some control over my situation by writing letters to my husband daughter and 2 little grandsons.  I write from the perspective of sharing my feelings for them and giving my grandsons 2 and 7 a roadmap to becoming a positive member of society and sharing my values and beliefs along with life lessons. I feel empowered knowing that when I am gone I have left behind a gift to comfort every loved one.

    i have spent the past 3 months getting CT and PET scans with contrast and radioactive agent.  My body lit up in both my lungs lymph nodes in the chest and a mass on my pulmonary artery along with the surgical bed of my pancreas and my liver and one breast.  They did biopsy of breast negative, biopsy of right lung negative, robotic surgery on left lung removed 2 wedges on 2 masses , 4 lymph nodes and a mass on pulmonary artery all negative for cancer! I am 1 week post surgery but feeling great knowing I am cancer free.

    Do not despair over scans as they were 100% false positives in my case.  My doctor also does MRDNA tests on my blood plasma every 3 months against the original tumor sample of colangiocarcinoma of the bile duct an extremely rare and agressive cancer. They can do this test for lung cancer as well. The company is Signatura and the test name is Natera. They are located in California and you can request this from your doctor in the UK first test result takes about 1 month with successive test results in 1 week or less.  It will find cancer 3-4 months before it shows up on a scan.

    Sending you hope from New York City. Be well and keep the faith

    Packaging Expert

  • Hi Tillyboo

    From my experience of going through the Lung Cancer diagnosis/treatment process, there was always a 2 - 3 weeks wait before I received the results at my next appointment with one of my Oncologists.  The radiographers who  review the scans and write the reports are forensic  both there examinations of the scans and the detail they provide in the reports to the Oncologists.

     I always found this high level of scrutiny reassuring.  

    You say  that Hubby is meeting with his Oncologist the coming Thursday, so surely he will get the results then?  Isn't it best he gets the results in a face to face meeting?

    I wish you both the best possible outcomes.

    Kegsy x

    "If you are going through hell, keep going" ; Sir Winston Churchill
    " Cancer may take my life; however it will not become my life" Kegsy August 2011
  • The last time he had scans, he didnt get them at the pre treatment onco meeting. The results took 5/6 weeks & onco rung with results. So no idea if results will be in this week, as its pre treatment checks onco chat & following day is treatment day.