Mom has NSCLC and is on Afatinib

Hello Danip

er all react differently but she had a good chance. 
keep in touch 

Nel

thank you for the reply and advice I really appreciate it.

warmest regards

Danip

Hi Danip

My mum was diagnosed with the same in December.  She started on triplet therapy (2x chemo and 1x immunotherapy) 4 rounds over 3 months, and is now on maintenance.  The prognosis is positive and I would say that there is every reason to be optimistic.  There are so many new treatments now, and lung cancer can be treated, even if it is incurable people can live long and well.  I recognise how you must be feeling, and the terrible uncertainty during the testing, and waiting for a diagnosis.  It is the scariest and most devastating thing ever to have happened to us. I can't comment on Afatinib, my mum is on pemetrexed and pembrolizumab (keytruda immunotherapy) maintenance.  But there has been a reduction in tumour size following the first 2 rounds of her first line treatment.  She is well, and very healthy, and really we are all feeling that there is every reason to continue to be  positive.  Do you mind me asking what stage your mum is and if it is isolated?

Take care, and sending positive vibes.

Nicola

Hi Danip and Nicola

lovely response from Nicola. So encouraging and positive 

thanks

Nel

I too was diagnosed in January and have been on Afatinib for 9 weeks 40mg the side effects have been awful and after reading your story about your mum I feel that I can ask to be reduced to 30mg because waking up every day feeling rubbish is soul destroying. I also have the same cancer as your mum and I am 67years old and until the lockdown still worked full time as a carer,I have been desperate to be in touch with someone else who is going through the same to find out how they coped with the emotional side of it and any tips on coping with the side effects, and if I can help your mum with any advice of what I’ve been through please ask. Talsa