Hi, having been diagnosed out of the blue in April this year with lung cancer which was also in my sternum I posted on here about my anxiety over upcoming treatment. Several people replied and gave me confidence to get through my first chemo, it hasn't been as bad as I anticipated, although the nausea was a beast.
My second chemo is coming up on 17th July and I'm more anxious than I was for the first one. And now, today I've received another appointment for the 16th July which I believe is to have my first targeted therapy injection of Amivantamab. I'm terrified, the possible side effects look awful and I'm currently waiting on a phone call to confirm when I'm supposed to take the various pre visit meds I've been prescribed.
Amivantamab is new to my hospital/oncology team and I understand that I'll be the first there to be treated with it. Does anyone else on here have any first hand experience of treatment with Amivantamab and could possibly share?
I felt so well before my diagnosis, I knew nothing was wrong with me, but already I feel less than myself. It's all so alien to me, never taking much more than the odd paracetamol for a headache, to having stacks of steroids & anti sickness drugs hanging about, blood tests and hospital appointments.
Thanks for looking.
Lesley x
Hello Lesley (LIH),
I know how you feel with the chemo treatment, I had cisplatin and vinorelbine for lung cancer 12 years ago (there was no immunotherapy then) and, 2 years ago, I had docetaxel for recurrent prostate cancer. In each case the first cycle was relatively easy and I too became more anxious before the second and subsequent cycles as potential side effects became more likely and potent. I know exactly how you feel it being alien to you, I was exactly the same during my first chemo.
I understand that Amivantamab is a fairly new immunotherapy treatment for lung cancer and this is most likely why you are the first person to be given this at your hospital. I'm sorry but I can't help with experience of this, but I'm sure you'll be closely monitored as you progress with it.
Hopefully someone will be along shortly with some real life experience to help you. In the meantime I wish you all the best for success.
Derek.
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