Hi all.
I am currently on Selpercatinib for my stage 4 lung cancer. I am looking for anyone else on the same treatment, as I have nowhere to go for questions. Is there a specific support group for this?
I am especially interested in the effect it has on kidneys. My team keep telling me it is damaging my kidneys, so we stop treatment for a week or more then go back on it, then stop again. We have also reduced the dose. I just don't feel that this is helpful to my body, but wondered if anybody else has had a similar experience.
Thank you
Hi Nosilla sorry your treatment sounds rough. I hope the lesser dose helps.
I have done a search of the site for posts about Selpercatinib but haven’t been able to find anything unfortunately. Have you looked at the Roy castle lung cancer site to see if anyone has mentioned it there?
Hi Jura
. Wit’s the exception of the return of my cough . I felt the effect of the drug within 4 days when my breathing restriction cleared. I have adenocarcinoma with RET positive . Only symptom I had was a cough (which resolved itself by the time I was diagnosed ) and very slight breathlessness which I probably would not have noticed had I a more sedentary lifestyle ?
Hi
I was diagnosed with NSCL cancer , adenocarcinoma with RET positive mutation 2 months ago. I have been taking Selpercatinib ( 320 mg/day) for the past 3 weeks with no side effects ( so far ) Altough I have a cough which had previously resolved itself prior to the diagnosis. The cough is worse at night but is a small price to pay for a therapy which appears to be working well. I had breathing restriction prior to starting treatment and this resolved within 4 days of taking the magic blue pills. I remain fit and so far the cancer has had no impact on my life . I am a 70 year old male with no significant medical history , mystified as to how this happened?
