Hello! I have been posting in the ‘New’ forum but perhaps I should be here? I no longer know what to think or do.
Unbelievably my wait continues, 17 weeks after my initial diagnosis I am no closer to getting treatment. I still haven’t seen anyone about the colon mass and apparently I am ‘in the system’. The urgent referral to gastroenterology is 7 weeks now. I have phoned PALS, sent emails etc and have now given up. Nothing from respiratory physio either.
i feel very tired and resigned.My gp can’t do anything because it’s out of his hands.
My breathing is poor, my abdomen bloated, I can’t be bothered to try fighting any more.
Never did i imagine I would still be in limbo over 4 months later.
Sorry to be such a misery, perhaps I need to stop posting x
Hello LoopyLou63,
I'm very sorry to hear that you are experiencing significant problems.
Macmillan has a publication outlining actions you can take, and how to pursue these, in circumstances like your own. I've attached a link to this below in case you haven't come across it already and hope it is useful for you.
I do hope you can make some progress urgently.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Thank you 
To be honest I don’t have any confidence in the hospital now but I will have a read of the booklet.
Never did I imagine that it would be like this. At no point has anything conformed to the NHS Guidelines, let alone given me any confidence in the system.
I even went down to the hospital to the Respiratory clinic trying to get some answers only to be told that I needed to phone the Appointment secretary, that’s the number that never gets answered, just a message stating that the line is busy. No answerphone.
i can’t carry on trying, I’m exhausted.
Hello again,
I wondered if you're aware of Macmillan's support lines, there are two that might be of help to you - our support line and raising your voice toolkit.
If not I've attached links below, have a read and contact them for help and advice if appropriate.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
