Confused with chemo

Hi Tillyboo 

I am sorry that this has happened, your poor husband has really had a rough time with his treatment. I just wanted to pop on and see how you are feeling today ? 

Awful. I cant move much in pain & Colin hasnt slept because of this treatment delay. His head wont switch off now & he will make himself ill. It doesnt help when you see a doctor who laughs when answering questions & doesnt give an audible answer. This doctor speaks fast with a greek accent so she is very hard to understand & when you ask questions she replies mumbling & laughing. So this is why I want to speak to his proper oncologist who knows how anxious he gets & explains things.

I've messaged the Marsden & the oncologist is calling either today or tomorrow.

I dread to think how he'll be waiting on scans & next appointment. I'm terrified for him. This as set him back to when he was first diagnosed.

I was just hoping someone on here had experienced the same thing & could give any information.

Its all a mess of anxiety now & me being unable to move far & in so much pain is just the icing on the cake!

Hi Tillyboo my husband Kevin,s treatment was stopped originally had premexted and keytruda And carboplatin had first scan a partial remission went on Premexted/ keytruda maintenance after 3. Month scan found tumours had started to grow back he took a break for. 3 months to recover declined a trial so now. On 2nd line treatment of Docetaxe/ Nintininab had scan found small tumour on spine which was zapped with radiotherapy and small one on liver he has lost a lot of weight and is very tired waiting for stairlift to be fitted hope you soon feel better 

Sorry its taken a while to answer, I am very unwell. GP says acute sciatica, but the hospital are sending a physio today to assess me. As I'm in agony pain meds dont work, I cant eat & more or less bedbound unless I hobble to bathroom.

I spoke to my husbands normal onco last week who explained in more detail that this is not end of treatment & apologised on behalf of other onco for saying that. My husbands back in on the 26th Feb to see if hes kidney function as dropped to normal range he also had 3 month scans on 12th. 

Not sure I can go with him on 26th as I am totally helpless at present & not sure if I'll be admitted to hospital today. Lifes a complete mess

From last time things have changed last Monday my husband was rushed to hospital with pneumonia last week, was also my daughter’s birthday and my 70th on the 26th they could not get him off the oxygen and on Saturday my husband sadly passed away he was 69 I am still in a bit of shock 

Oh no, I am so very sorry.

We have spoken on here from when my husband was first diagnosed. I am truly sorry & wish I had words to comfort you, 69 is no age. If you want to keep talking with me on here, if it helps, then please do. 

My deepest condolenses to you & your family, may your beloved husband rest peacefully. Sending love, Teresa xx

Thank you for your kind words I hope all goes well with your husband and that you feel better soon. 

Sue

Thank you. All his results have been amazing & hopefully restarts maintenance chemo Thursday. But as lung mass as shrunk to 29mm, I'm asking about radiotherapy. Hes fine, still asymptomatic & we're away on 22nd. I'm still recovering with my spinal issues. 

Thank you for thinking of us both, when you're going through such heartache. But please do keep in touch, even for a chat about anything.

Take care, Teresa xx