My husband went to have his premexted maintenance treatment today ( I couldnt go as ill in bed) and was shocked to get a call to say his kidney function levels spiked again creatitine 133.
So hes now on saline for 4 hrs & as to go back in 2 wks to see if he can resume chemo. If no change chemo stopped & he goes off the trials unit to another unit in the Marsden.
For the life of me I could not make sense of what doctor was saying. It feels like this is the end of the road. Esp when she saud about coming off the trials unit.
Hes 3 monthly scans are on Thursday.
We are boojed to away next month. Hes not ill no cough blood urine ok etc so to hear this news this morn as absolutely gutted us both.
As anyone been on premexted maintenance for stage 4 & haf chemo stopped, if so whats next? Immnotherapy didnt work. He had 4 rounds if carboplatin/premexted & not a problem. Then as soon as he starts maintenance this happens. So hes had only one premexted maintenance since the full 4 course stopped in Dec & since then hus creatitine levels have spiked from 75 to 111 down to 103 & today 133. Hes drinking nearly 2 litres of water per day.
Scared doesnt even cover how we are feeling & it doesnt help I'm in bed & cant move.
Any input from anyone whos had this similar experience would be appreciated. But to be told told he'll gave to come off the trials wing to go to a normal unit just doesnt sound good..
