Squamous cell cancer

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Hi everyone.

I was diagnosed with squamous cell lung cancer last week .i am devastated as i went for a routine lung scan in July 23 and was found to have a nodule .they said they would keep an eye on it .i had a pet scan in August 23 which was told it hadn't picked anything nasty up.

Since then i have had more scans and it did grow a few months ago so had a lung resection on 21 October they removed the lesion but because of where it was they had to leave some attached to my oesophagus .

I have now been diagnosed with lung cancer and have been told i will need chemotherapy and radiotherapy .

They are saying the set scan may not have picked it up .as this was 15 months ago i am really frightened and so upset that it's too late to cure it .

  • Hiya SueM1

    I see you’ve not had a response yet but wanted to reach out and say it’s ok to be in shock and scared.
    But there is a lot of good information on here. 

    Just search for what you want to know and just ask away, 
    there are many good folk who are really helpful and nothing goes unanswered that I’ve seen so far. 

    All the very best and hugs

    Sylv

  • Hi sylv, 

    Thank you for replying to me. I have to see the oncologist on the 11th Dec to discuss what treatment i need etc. I am so worried because i feel that something should have been done months ago . I am trying to be positive but am finding it difficult and am having episodes of just crying . I'm sure everyone must feel like this .my husband always looks on the bright side but i have always suffered with anxiety. I assume you must be on here because you have cancer . If so i hope you are doing okay x

  • Hi Sue I was also diagnosed with squamous cell lung cancer in lymph nodes in neck to, I had chemo and radiotherapy and 2 lots of immunotherapy had to stop it made me ill that was 2 years ago my last scan showed just scar tissue,I hope this gives you a bit more reassurance and hope xx

  • Thank you for replying sandyh. I'm still trying to get my head round it .it is reassuring to hear that you are doing okay and hopefully it will continue to improve. I have to see the oncologist on the 11th and they will discuss what happens next . I am really anxious about it but need to know exactly whats happening .i was being told for over 12 months there was nothing to worry about on my scans so was really shocked after having a lung resection to take the lesion away to be told that it was actually cancer . X

  • I had a pet scan and was told the results were it didn’t pick up the light as much as we thought it would so I was given two options. Wait and see have another scan in 3 months or go for a lung biopsy. I went for the biopsy which it came back as cancer . Not sure this will help 

  • I was never given a choice .i was told the pet scan was okay. This was in July 23. Since then i was having pains in my ribs and shoulder for months .nobody seemed to associate it with the nodule i had. I was told in December that it had decreased in size .then i was told in March it had got bigger and it measured 2.5 cm . It had grown to 3.6 cm and i had an operation to take the lesion away in October .it turned out to be lung cancer .i am waiting to see the oncologist on the 11th . I am really worried that it's been left too long .i have constantly been told that there was nothing to worry about even though i did keep questioning it x

  • If I were in your position I would write down a list of dates and questions I will keep my fingers crossed Fingers crossed that you get the answers you need . I went to see my GP just not feeling good he wanted me to have a few test done bloods with the nurse , chest X-ray stool sample . bloods were big increase in red blood cell plus X-ray showed something that’s how I started this year in May cancer confirmed June and lobectomy 20th August 24 . I had no lung cancer symptoms. 

  • Yes i will be asking when i see the oncologist . I hope you go on alright . 

  • I am not coping very well at all .i have suffered with anxiety for years . I am starting my radiotherapy and chemotherapy on the 30th December .i am really worried and this part week have been having palpitations and the medication that I take for left bundle branch block has not been working so the doctor has increased my dose and i still don't feel great .i could just cry all the time but I'm trying not to .my husband is a really positive person but i am more of a worrier i can't help it. I have also been told that because when they removed the cancer off my lung they had to leave a little bit on my oesophagus and i may need a feeding tube if they radiotherapy damages my oesophagus .i am really worrying about this .