Terminal diagnosis

Hi

I am sorry to see you have had no replies yet, this must be a very upsetting time for you and your mum.

My friend was diagnosed with stage 4 small cell lung cancer in August 2023. Like your mum she had pneumonia and a litre of fluid drained from her chest. She was put on emergency chemotherapy and later immunotherapy. She was told it was incurable and treatment was palliative. Now two year's later she is ok, obviously not cured but stable. Unlike your mum though my friend's cancer, although large, was just in her lung with no spread.

I think if you ring the cancer nurse specialist at the hospital where you mum is being treated, they will help and advise on support for your mum and yourself. 

Regards

Ann 

my husband has had cancer of the oesophagus for 7 months at the beginning I researched specialists and everything about it and went on these forums and rang the nurses for assistance and advice.

could you do the same and get a 2nd opinion from another specialist ?

also try Ai app online I know it sounds mad but it is incredible and may come up with a clinical trial or treatment that would help

if like me you will be trying everything to help love is like that is it not ?

I send you love and hope and big hugs never give up.

much love

fiona

xxxx

Thank you Ann- am so happy to ever your friend is still going strong ., it’s things like this that I think we need to hear 

the McMillan team have been in touch since my post and things have kind of escalated in terms of her care - home support arranged and although she is currently in hospital they seem quite positive that once they fit her a permanent drain tomorrow we will start to see an improvement xx

Thank you Fiona and yes we are willing to search for anything she is due to see another consultant following a biopsy so I wonder what and if he would take the same view not that it isn’t terminal but the timescales - I just cannot seem to accept that part at the moment x

they are looking to fit her with a permanent drain and explained that due to how much fluid is there it’s squashing the other lung which is why her breathing is so laboured and difficult 

Thank you for the love - it’s very much needed… sending you and your husband the same xx  

Bless your heart never give up keep researching ️️

Sorry I missed your post Amy035ef7e3 but glad to hear things are moving forward for mum now. Having the drain fitted will certainly help with her breathing. A nurse will empty the drain for her at home so all that will be taken care of. Cancer can take a lot from us, but one thing it cannot remove is hope, so please do not give up. 

Thank you ️️️♥️