Not diagnosed yet

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Hi,  

My dad had pneumonia back in September and was hospitalised for nearly two weeks. It was pretty bad. Once he was released he was a lot better but we found he kept having shortness of breath. He was due an X-ray 6 weeks after the pneumonia to check it was resolved. A week after that the GP called and said part of his lung was collapsed so he had an emergency CT next day. We didn’t hear much from that other than a doctor calling to prescribe mucus thinning drugs that he could collect from the hospital. 
today he had a call booking him in to the respiratory doctors for 3rd December. The man on the phone wasn’t a respiratory doc but said they’d talk to him then about possible further investigation like bronchoscopy. I thought I heard the man on the phone say that the MDT had arranged the appt in Dec. He said they thought it might be ‘residual infection’ but might need to rule out anything sinister.

He has now had two CT scans and about 10 X-rays since mid Sept. Could CT not see a mass? Is it impossible to tell if it’s infection/mucus or a tumour? I’m really not sure he even realises this could be a possibility because nobody has mentioned it to him. I think he just thinks he’s got a bit of infection left?

mot sure why I’m writing other than I’m scared and alone. Huge love to you all.

  • I can't really help you as its in the hands of the hospital that treated your Dad. However I can advise you that lung infections can take months to clear often as much as 8weeks  before an X ray comes up clear. untreated lung infections can sometimes leave scarring of the lung too. Its very difficult but you can speak to your Gp if an appointment is available to put your mind at rest till a proper diagnosis is reached. Your Dad possibly needs your support at this difficult time so you need to be A1 also . Emotions tend to take over but remember a problem shared is a problem halved. Your GP might be able to speed up a diagnosis if nothing else. Have to say I am not sure how safe that amount of Xrays is in such a short time changes do not occur overnight your dad needs rest & time to recouperate from the pnuemonia and support where possible from his GP and community team. Hope this helps you , & you have some good news soon . Take care time is a good healer.

  • Thank you. He actually has a GP appointment this week, they called him and said they’d like him to come in. Wondering whether they will tell him if they think it’s suspected cancer or not. I don’t know. Everything just seems very unclear and nobody is really telling us much. 

  • That's good news , sounds  like he may get a diagnosis  now . Its not usual for GPs  to give cancer diagnosis but he may get referred back to respiratory clinic  or fingers crossed  it may be a treatable condition. Unfortunately many hospital journeys especially as in patients often confuse the issues. I often wonder how the DRs keep on top of it all, especially new trainees. Please let us know how you get on with this and thank you for replying. Oh I do have diagnosed lung cancer  but its still a confusing issue in my case too so share your feelings. My diagnosis was given earlier this year  and my left lung remains untreated I go back in January for further reveiw & new plan possibly. It is hard to deal with these uncertainties when your the one  suffering with illness and often discomfort and pain, so every best wish for you & dad with the GP. 

  • Hi all,  

    got some more info from his most recent CT

    Prominent reactive lower mediastinal and hilar lymph nodes seen. No pleural or pericardial effusion.

    The pulmonary parenchyma shows patchy ground glass opacities in the LLL, linear probably post infective, subsegmental atelectasis seen in the LLL anterior segment.

    Trachea and main bronchi unremarkable.

    Impression:

    LUL atelectasis - probably post infective.

    GGO LLL probably infective.

    Reactive mediastinal adenopathy.

    Follow up imaging post treatment suggested.

    but he hasn’t been given antibiotics. His CRP is 66 and is only abnormal blood. 

  • Hi everyone. 

    Dad met with respiratory today. They said that the CT is showing a partial collapse of the lung which makes part of it impossible to see. They said it isnt the typical way that lung cancer presents but can’t say what it is. 
    They have scheduled a bronchoscopy on Friday morning and said they will biopsy anything they find. 

    Is it normal for doctor to say anything about a bronchoscopy after it happens? Presumably if they biopsy anything we have to wait for it to be analysed. They said if they do that they’ll get the results and discuss it at their MDT meeting before getting back to us. 

    I feel so overwhelmed. Would other scans etc happen/get scheduled if they find something to biopsy on Friday? I don’t really know the order of these things. 

    Thanks so much for any info.