Mums diagnosis

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In February, my mum was involved in a road traffic collision which led to multiple trips to A&E, after being given the all clear we went home so that my mum could try & recover from the help of her sisters, me & my brother. After the accident she was told that she would suffer with a chest infection due to the trauma to her chest. 

February 12th, 2024. We went to the GP surgery as my mum was struggling with her breathing due to the chest infection, the Dr immediately sent us back to A&E with a suspected bloody clot on her lung, after 19 hours.. chest X-rays, bloods & CT scan, the Dr confirmed that there was no blood clot on her lung but she did come across a 1.3cm nodule on her right lung, she seemed concerned & I suffer with anxiety as it is, so I came right out with it & asked if she thought it was cancer. She explained that she was concerned that it may be something sinister, as my mum had a CT scan 12 months prior & the module was not there. We were referred to the chest clinic and they got the ball rolling, they sent her for a PET scan and it came up that the nodules were feeding off the radioactive sugar and was told by the consultant that they’re 85% sure it’s cancer but would like to confirm with a biopsy. 

Fast forward to April 4th, 2024. We went back to see the consultant for the biopsy results. We walked in the room & there was a surgeon sat with our consultant, I felt sick & alone and I tried really hard to be strong for my mum. They confirmed a diagnosis of Stage 1 Lung Cancer. Since coming home, I have family members who tell me how lucky we are that it’s stage 1 and I hate to be negative but I’ve just been told my mums got cancer, I can’t look into the positive. Her husband is leaving, we are selling our forever home, I’m 23 and have a large support network. I feel that I can’t speak with my support network, I feel as though i should remain strong for my mum. When I’m alone all I do is cry, I don’t make time for myself because I’m constantly by my mums side (I wouldn’t have it any other way) 

She’s my world & my best friend and I can’t help but think if there are any complications she might face in the surgery. I’ll never live with myself knowing she’s not here. I’ve basically come here because I just need some advice how can I continue? 

  • Hello 

    I've just been diagnosed with the same, small curable and operable if I want to go down that route. You're correct that you should be strong for your mum but I can honestly tell you that she'll be more worried about you than she is about herself.  My advice is to tell her how you feel. She could be too scared to upset you by asking outright! I have one son and luckily we're similar in our attitudes! "It is what it is....... Cross that bridge etc....." I'm happy that it's so small and am going to have SABR radiotherapy as the surgery is very invasive for me and not something I want to go through.

    Losing your mum (at any age) is heartbreaking but you ARE fortunate to still have her so make the most of all the time you're together. Again, I'd talk to her. She's probably my age, 55 or younger! She'll want to know if you're suffering.

    Big hugs 

    Rebecca

  • Hi Rebecca, thank you so much for your message and I’m so sorry to hear that you’re also going through this. Mum has decided to have the surgery, which again has spiked my anxiety due to the severity of the operation (not sure if I’ve used the right word)  

    thank you again Rebecca for you kindness, even though you’re suffering yourself. Wish you all the best in your recovery process. 

    Morgan x

  • Hey Morgan. It's fine honestly. My lung specialist told me that the surgery is the best for this condition. I'm going for the radiotherapy because I'm not fit enough for surgery and I'm too high risk. Also, I'm a baby lol. 

    Please let me know how you get on and how your mum is throughout this xxxx

  • Hi mvjohn.

    I can understand your anxiety. It's quite a shock when you are given this diagnosis.I just feel I want to let you know your mum will be in good hands. I had surgery in October last year to remove cancer from my right lung. My surgeon removed all the cancer. But because mine was stage two I was also offered chemo as a precaution to mop up any cancer cells that may have escaped. I began the chemo in January. I had a ct scan last Thursday and saw my consultant yesterday and she has told me the ct scan was clear. It was all worth it. It is so good that your mum's cancer was discovered so early. Let us know how she gets on.

  • Hello Mvjohn,

    I can understand your feelings, it is a terrifying position to be in.

    However, as others have said, surgery is the best possible chance for long term survival and although things might look bad at the moment there really is a very good chance that treatment will be competely successful.

    I was diagnosed at stage 2A and due to the position of the tumour my entire right lung had to be removed. I also had to have chemo as a precaution afterwards due to cancer cells being found in the lung close to the tumour site.

    The good news is that it will be 10 years in June since my reatment and all continues to be well.

    I wish you and your Mum all the best for a similar outcome.

    Made in 1956. Tested to destruction.
  • Fantastic! 10 years ... love that. So encouraging to hear the success stories of other people.

  • Hi, I was diagnosed with a small T2a M0 N0 upper left lung adenocarcinoma last September, and after the usual investigations of numerous CT scans, PET scan and lung biopsy I was offered surgery.  After spending a weekend researching the risks and complications of surgery, which is major surgery, I refused it, and after a long detailed discussion with my Oncologist I requested SABR. I began treatment, which involved two and half weeks every other day of SABR radiotherapy.  I had my radiotherapy planning CT and tattooing on the 21 November 2023 and began SABR treatment on the 28 November 2023 - in total eight treatment sessions, ending on the 15 December 2023 with virtually no side effects, mainly just fatigue, I felt back to normal after about two months.

    I had my follow up CT scan on the 18 March 2024 and outpatient appointment with the Oncologist on the 2 April for the results.  Apparently the lesion (it is only called a tumour if 3cm and above) has shrunk by 50%, bearing in mind that SABR carries on working in the body for up to four months after treatment finishes, and also the Oncologist said it can take up to 6-12 months for the cancer cells to die off completely as SABR attacks the DNA of cancer cells causing them to slowly die off.  He was very reassuring and said I was having a positive reaction to SABR - he also said because radiotherapy produces scarring of the area treated, (this will resolve in time) this can give an obscured view and that future CT scans give a clearer picture.

    Anyway,  I thought I would have a repeat follow up CT in three months, but the Oncologist said because everything looks - in his words "hunky dory" and the SABR has worked, I do not need another follow up CT for another six months - the relief was tremendous, I now have a whole six months to enjoy the Summer without worry.

    Very best wishes, and anything you want to ask me regarding SABR, please feel free.

    Ann Heart

  • Hi. My mum was diagnosed with SCLC in December. Due to being in her 70’s and not in great health she has copd and arterial fibrillation she was unable to have surgery. 

    the oncologist said the best way forward was chemotherapy followed by radiotherapy. She has one treatment of chemo left (tomorrow) then we will be arranging radiotherapy.

    i am the same as you, my mum is my best friend and I would be lost without her. I am caring for her and have taken some time off work (although I don’t know how much more time I can afford to take off) 

    I have found the best way to cope is to focus on one day at a time. Everyday she is here is a good day. My whole world revolves around my mum we have found a routine that works for us and she likes me to spend at least ONE day at home each week. I have found crafting helps me to detach from the bad stuff happening. As well as focusing on the facts! I organise all her medication after her chemo set her reminders in her Alexa and make sure she is okay everyday. I take her to all appointments. Don’t get me wrong I have days when I feel low but I am good at masking it (suffer with poor mental health as it is). 

  • What a hard time it is for you and your mum. It’s great you have reached out and voiced now you are feeling. When I lost my father suddenly I didn’t know I could cope with pain like it, but eventually you will, in time as you digest things it won’t feel as acutw (though wil always be there). When you’re ready it would be good to talk to your networks, friends are not just there for the good times. Wishing you and your mum all the best 

  • hello MVJohn ,I am 18 months after surgery to remove the middle lobe of my right lung ,i had a small nodule of 19mm and the told me the best option was to remove the middle lobe ,i was scared but i went through with it ,believe me when they tell you that the operation at stage 1 is the best option ,i have had no chemotherapy or anything else after the removal ,only scans every 3 months to make sure everything is ok ,this July i will have a full body scan just to  make sure ,when my nodule was removed they sent it for tests ,which came back as 20% of it was cancer ,so yes i could say i am one of the lucky ones ,they caught it early ,so yes you have to be strong for your mum ,she will also be worried about you and how your coping ,i know because i am a mum to 3 over 40 years old and i was so worried on how they would react that i did not tell them i was going in for the operation untill 4 days before .let your mum know how you feel it will help her to talk about it as well