Hi all
First of all just wanted to say a big thank you to all that have posted on here and those that have replied - it's been a great help and a great resource ...
I've been diagnosed with T4 N3 M1b Adenosquamous lung cancer ("predominantly adenocarcinoma with some squamous features" according to the biopsy) and am due to see the oncologist next week to discuss possible treatments. I have a very high PD-L1 count (100%) and am yet to receive results for any molecular markers....
There's not much information on this cancer type on any of the UK websites, but there seems to be a bit on the US websites, but I just wondered if anyone else has been diagnosed with this or whether it's rare diagnosis and what it might mean for possible treatment plans.
Hi Tallbee sorry you find yourself here. My mum has the same biopsy results as you. Apparently this is not uncommon but I have struggled to find anyone else who has this as well. We asked the doctor and they said the improvements in testing will make this more common.
We are due to meet the oncologist next week to discuss the biomarker results and treatments so I can’t really offer anything more sorry. I think from what I understand is the results from the biomarker tests are the key to what treatment is best. Wishing all the best for next week.
Hi Lujo Thanks for replying and the information. Sounds like next week will be an important week for both of us and it's good to find at least one other person with this diagnosis :) I'll update this once I know more next week. Best wishes to your Mum too
Hi Tallbee and Lujo
just wanted to say hello and give you both some positive news regarding having a diagnosis of Adenosquamous lung cancer. I was diagnosed with this sub- type of NSCL cancer nearly four years ago, stage four, and I’m still not only still here but currently NED ( no evidence of disease) at my last scan. You can see my journey on my profile.
Wishing you all the best, Marie
Learn from yesterday , live for today, hope for tomorrow. The important thing is not to stop asking questions (Albert Einstein)
if you can’t fly, run, if you can’t run, walk. If you can’t walk crawl: but by all means keep moving ( Martin Luther King)
Hi Marie1964
thank you so much for replying and yes you are so right positive mental attitude is so important and i found your story very helpful - thank you. Being NED is such a distant thought for me right now, but reading about your journey has made that come just a little bit closer :) Sending up best wishes for April 2023 :)
Hi Lujo - hope you and your Mum have had a good day....I'm just back from the Oncologist. They said Adenosquamous is a fairly common diagnosis these days - but so much depends on the biopsy and where they were able to get a sample from. My treatment will basically follow the Adnocarcinoma route and since i have high PD-L1 levels I think they will start me on the immunotherpay drug pembrolizumab (keytruda) pretty soon. It the same treatment regardless of type of NSLC I have. They are still waiting on any molecular markers to come back so that may change...
Hiya Lujo and Sparkles :) hope all is well with you two - hope your meeting went well?... I'm slowly inching forward with a treatment plan. Just had my results back and I don't have any molecular markers so will be sticking with the immunotherapy plan - will see the oncologist next week for consent forms and blood test prior to starting treatment...
Hi Tallbee I am glad you have finally got your results back. Least your plan is the same as before and you know what you are definitely having. How often will you be having your immunotherapy? Looks like you and my Mum are the same time scales and she is going next week too for consent and bloods and treatment the following week. She has had her pleurodesis done now so hopefully that’s one leas thing to worry about. I will update her as she isn’t on here. All the best for next week.
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