Just discharged after lob a segment removal of nodules for biopsy

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I had surgery last Tuesday which was booked two hours and turned into four hours three hours lung collapse

When I awoke I was in HDU joined everywhere to monitors and drains   I spent five days there and two days on a ward. 

I feel like I cannot breathe. Wheezing and tight though I’m not sure it’s the chest. 

Any suggestions on breathing exercises or using a nebulisers would be really great. I’ve contacted my nurses and they’ve not called back yet 

Feeling anxious with this noises coming out of me  

Discharge Summary 

7/3 right vats lower lobectomy & wedge resection of upper lobe 

  • Have you not got a walk in centre near to you, even if you phone 111 they will check your doctors online  for you or find someone who will see you, just don’t leave it. 
    Dear lord, trying to help someone who’s breathless and send them into a coughing fit Rolling eyes the idea was to make you less worried 

    Julie
  • They gave me a tube type of breathing thing that I had to blow really strong puffs into, 

  • Do not be afraid of being firm with the receptionist, I usually say I have cancer and am in serious pain here  I need to see a Dr today how more urgent does it need to be, It works because they are not qualified to try and diagnose anything, If you dont get an appointment ask to speak to the practise manager or senior partner 

  • Well done Julie! I missed the date completely! I think like Ann, I was thinking it’s a percentage! 

    Ann if you can’t get a doctors appointment ring 111, they will get you an appointment. X 

    “Try to be a rainbow, in somebody else's cloud” ~ Maya Angelou
    Chelle 

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  • I had an upper right lobectomy a few weeks ago and 6 days on the ward. Coughing up bloody lumps stopped after a week. I tried to do the deep breath exercises as many times a day as I could remember. ie. just take as deep a breath as possible and hold it for a few seconds. Also deep breath 'huffing' helped - as if you are cleaning glass

    The deep breath and hold I still do as just standing up can have me panting. Deep breath hold for 5 seconds stops all that

    The surgical emphysema were floating round front of chest for a couple of weeks but also disappeared slowly

    Depression set in  a little after discharge and has gradually faded. That is strange as having had a curative surgery, with nothing found in the lymph nodes removed, I should be joyous. Every day feeling slightly less tired and slightly more energy

    I did not push it with the exercise but after less than 2 months I can walk a few miles

    Best wishes

  • Hi JohnyySmith

    Thank you this is really helpful thank you. I am a positive thinking when I can take the right positive moves to get where I want quickly. If I am told to sit on the sofa a do nothing I will do it. If it benefits me. Thankfully you’ve given me a positive energy 

    I bought myself a nebuliser and that’s having a benefit 

    You don’t have to jump out of bed everyday saying how lucky you are. I know exactly what you mean I went through the same after my LAR. I had a massive op with stoma and clear margins. I felt joy for a little while but once home I felt guilt because I should be so so happy coz I was lucky. Well luck is in the LOTTO Cancer is not luck it’s a ghoul 

    You have a kind day. 
    Thanks for the exercises 

    Ann
     ‍Art

  • Hi Ann,

    I had a lower right lobectomy in January.

    Your questions:
    Right vats lower lobectomy - the right lung has 3 lobes, the lowest is the smallest one, VATS is video assisted chest surgery (the least invasive type).
    Wedge resection of upper lobe - a small part of the upper lobe was removed while they were at it.
    Almost certainly some neighbouring lymph nodes would have been taken for biopsy to confirm no further spread of disease.
    So the good news is that they've done the absolute minimum amount of collateral damage in getting rid of the cancer.

    The bad news is I think you really should have had more support than what you have had.

    That tube type breathing thing, it wouldn't be something like this flipbooks.leedsth.nhs.uk/LN003799.pdf Spiro-ball? If so, you breathe IN not blow out. They gave me one but in the end I gave up on it.

    Far and away the best thing you can do is walk as much as possible. Popping up and down the stairs where you live is a great alternative. Try to do a tiny bit more each day. Expect to feel utterly wiped out by activity - that's normal at first and takes several weeks to ease off. Paracetamol is appropriate for the pain if they haven't given you anything already. Don't strain or lift anything heavy, the stitches inside you are slowly dissolving, they do the job but they aren't super-duper-strong. Keep the wound dry until the scab falls off.

    Finally, keep an eye on your temperature - if it starts to go up get onto your GP or hospital A&E straight away to check for infection.

    kind regards
    Steve


  • Hi Steve

    Thank you I feel so much better after reading your explanation of the discharge slip  I have.
    It makes perfect sense my surgeon told me that it would be ad small as possible to get at what he needed and only two hours. But my heart didn’t play ball she’s such an attention seeker. It’s left me thinking the worst so your post is just what need  

    I am trying to add more movement around the house and find I am wiped out need a Power Nap then I’m off again  Similar to my LAR  that’s how I recovered from that 

    It’s wonderful I’m doing all the right things I just wish my team would have assured me a little more than they have  they really seemed flippant which in their grand scheme of things it is  But not in our world  

    best wishes 

    Ann 

    Ann
     ‍Art

  • Results are in I requested a phone call results of my biopsy 

    It’s lung cancer Adenocarcinoma they have got clear margins so it’s four monthly scans first year then yearly 

    I imagine that if it reoccurs I will have the option of SABR. 

    i have had a call from my nurse who explained that I was admitted to intensive care for four days as my blood pressure was through the floor. I was actually in a dangerous situation, thankfully our NHS kept me stable. Owing to the lack of oxygen to my brain it explains my delirium after the op. 
    I am gaining more strength slowly but surely. 
    My nurse said at least three months. So I have to be patient 

    Thanks for all your support 

    Hope you have a good weekend 

    Ann
     ‍Art

  • Hello Ann,

    Thats great news and you sound so much better, I’m glad you got all the information you needed. So now it’s relax a bit and enjoy yourself, little by little as you already know and with that patience you mentioned you’ll be ready for summer Sun with faceCocktail

    Take care

    Julie