Very Emotional

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Hi All,

I’m sorry to come on here again but I just need to vent, very tearful today.

As from my many posts, my Dad was diagnosed with Stage 4 SCLC in June 2021. He’s since had 4 cycles of chemo with immunotherapy, then stayed on immunotherapy until December. He was admitted to hospital in December with low sodium levels, which he had last summer and they did a brain scan, which showed some slight changes to a previous scan so they decided on 5 sessions of radiotherapy, he is now on 4 cycles of CAV chemotherapy. His Oncologist was happy with the progress of his Lungs and Liver and the set back was the spread to the brain.

He is having a head and chest CT tomorrow and then he will see the Oncologist again to see what the plan will be. He is due his next chemo of CAV (cycle 3) on Thursday. 

We also found out over the weekend via blood sugars were sky high from the steroids, we now have St Francis involved for support etc and to help with anything we need. 

The Radiotherapy and Chemo has wiped him out but he is starting to eat a bit more. He mental positivity is zero, he’s very angry, he snaps at my Mum all the time, he’s become a shadow of the man he was, he doesn’t make himself do any exercise, even though he was told Friday by his Oncologist to exercise his legs. He has written himself off completely and as a family, it’s so sad to see but also very frustrating. I have 3 children, 11, 12 and 3 months. They idolise him but are struggling to see him how he is, mentally he just isn’t there. I haven’t told my children about my Dad’s diagnosis, they know he has medicine but I cannot bring myself to tell them what his medicine is for. It’s very hard. I don’t want to upset him but on the other hand I want to tell him he has to be positive. 

I’m sick with worry about him, he can do this! I just pray his head CT shows improvement otherwise I think they will stop his chemo.

Sorry to rant to you all x 

  • Hi Toppy,

    It’s so very hard. I have 3 children, 3 months and 11 and 12. I don’t know if I should be honest with them about what my Dad has got, just don’t know what to do for the best at the moment.

    My Dad was due for his chemo today but turns out he has a chest infection so he has to have antibiotics and go back next week. He currently weighs 8 stone, we’re all so worried about him. This Radiotherapy and Chemo has really taken it out of him.

    So sorry to hear about your Dad also, it must be so draining for you all as a family. You’re all trooping on so well and sounds like you are a fabulous support for your parents. 

    Sending you best wishes always xx 

  • Goodness, Thats a handful, I think in your children, for me personally, better to prepare so it's not a such a shock.  I have Nephews aged 8 & 10, they have been told about their wee gran and they seemed to accept it easier than us but they know its coming.

    Your Dad has had a really rough ride, bless him. You must be worried but you keep you chin up Dad will fight when he has to.

    We have had to learn to accept things as they come, since Apr21 it has been a rollercoaster with both of them.  Just keep smiling.

    Sending you all best wishes xx

  • Hi Toppy,

    I think it’s got to the point now where the need to be told, not because he’s going anywhere but because he is the way he is at the moment and I want them to be able to talk to me about it and tell me how they feel when they need to. Also, like you say, I don’t want something to come as a big shock. It’s so hard, trying to protect them but on the other hand am I making it worse for them now by not telling them.

    Definitely a rollercoaster, just have to do day by day. Tomorrow is a new day and his birthday so we’re heading round there.

    Take Care

    x

  • Happy Birthday to your Dad.

    It sounds like it's time.  I have told my oldest Granddaughter and she know that It's cancer and Cancer kills, she got a little upset but got on with it too.  She loves her Great Gran and always wants to go visit and spending as much time as she can.  They always make her laugh, as she say's, they are silly.  It gives her the expectations of their limits so doesn't overly push them to play etc.

    They probably already sense something is different, and little ears will pick up on things, so, I think being honest, helps them and they trust you.

    Have a lovely time with your Dad today.

    Take Care x