Oh Hech - Change of Plan

Hi Johnoo, I am really sorry to hear that things are not going to plan. You really are being pulled through the wringer aren’t you. 

Surgery is always the best option when looking for a cure, but people have had a good result with treatments.  They have already mentioned radiotherapy, and I see that you have mentioned chemotherapy. Has anyone mentioned immunotherapy to you at all? Sometimes this is offered instead of chemo, sometimes it’s alongside chemo. 

I think some of the questions you have asked will be better explained by a medical professional, so it might be a good idea to talk this over with your GP.  You could also phone the Macmillan support line and ask to speak to one of the nurses there. It’s a free call number 0808 808 00 00.

Anybody,

Any more comments?

I phoned the nurse at hospital but she seemed to say, just wait until we do the next biopsy.

But my feeling is that they tried to do this & failed due to its position, so why try again?

Hi again  ( I replied to your previous diagnosis message asking your age . My mum is very similiar . 79 yr old. ... do they think the lymph node is a different cancer ? Why do they want to biopsy it I the same cancer ? I’m a bit confused. Mum had her lung tumour biopsies and it’s NSC cancer like you . They have sent a sample to For DNA testing to see if immunotherapy is an option ( I think ) we find out plan on Tues. fingers crossed not too long to wait cos she’s in a lot of pain ( ? Pressing on a nerve ) . Good luck with your plan. When do you find out which meds you will be put on or treatment starting ? 

They do not know if the Lymph node is a different cancer type as they have not done a biopsy. Said they would not do it as it was near to an artery. But the surgeon has asked that they try again this coming Wednesday.

I then have to wait until 12th May, after the analysis of the sample & the Multi discipline team meeting to be told the conclusions.

It could be operation on main cancer + Drug Chemo/Radiography on the Lymph node but this is just my feelings at the moment.

Just got to wait for the medics to say what they think best.

The waiting is the worse part

Hope this helps you

Thank you 

The waiting is definitely the worst part! The process sounds tortuous and it's very frustrating that they want to try the lymph node biopsy again. However I think while they're putting so much effort into getting the full picture before a treatment plan that sounds encouraging. You're obviously not a write off! It's just a case of finding something to distract you while you're waiting... Easier said than done. 

Control Freak, Yes I agree!!!

Hi Johnno, I have been reading you story, very similar to my Mums but we're still at the guessing stage.  Just wondering how you are getting on xx