Seven years ago my daughter was diagnosed with a low grade glioma in her brainstem. She had radiotherapy and chemotherapy tablets, treatment lasted for about a year. The tumor shrunk alot and she continued with MRI scans every 6 months. Latest scan...
Hi everyone, We’ve launched our annual survey for 2024! We want to hear what you think about the Online Community. The survey should take around 15 minutes to complete. The survey is anonymous. Please complete our survey here. This survey is designed...
Hi I am new to the group. I was diagnosed with a craniopharyngioma in January and am scheduled to have transphenoidal surgery in a few weeks. I wondered if anyone has experience of this type of tumour or surgery? Thanks
Dealing with a benign brain tumour and reassuring family and friends. Mine was diagnosed late 2021, having taken early retirement due to a fall at work that affects my back. I have been open with close family and friends and research has helped somewhat...
Hi everyone, We’ve launched our annual survey for 2022! We want to hear what you think about the Online Community. The survey should take around 15 minutes to complete. The survey is anonymous. Please complete our survey here. This survey is designed...
Hi, I'm a 49 female and was diagnosed with meningioma brain tumour end of November 2018, I got an MRI, seen neurologist and neurosurgeon and told I had been accepted for gamma ray knife treatment in Leeds as we don't have that facility in Northern Ireland...
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