Hi everyone,
I was diagnosed with bowel cancer with liver metastatic in February 2024 and had surgery to remove the primary tumour but left with liver metastatic. Fortunately it had not spread to any other parts of the body. I have had several rounds of chemotherapy, been assessed for liver surgery but this not suitable due to position of the tumour. I was also assessed for SIRT but this was not possible due to the way the blood supply worked to the tumour in the liver. I also developed Lupus as an allergic reaction to the chemotherapy medication. Since then I have had a PLCC line put in to try another chemotherapy drug. Recently I have become very disillusioned as it seems like long waiting times for disappointing results and joined this forum for some support with people with similar experiences.
Hi Horty and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I’m Anne, one of the Community Champions here on the Online Community and, although I'm not a member of this group, I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.
If you don't get any replies here, it might be an idea to also join the bowel cancer group as I know you'll find people with secondaries there and it's a more 'active' group.
If this is something that you'd like to do, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
While you're waiting for replies, it would be great if you could put something about your diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
I can only imagine how hard it must be to be told the treatment that you were going to have is not suitable.
((hugs))
"Never regret a day in your life, good days give you happiness, bad days give you experience"
Hi
i have just joined the online group this morning, your post was the first one I clicked on. I'm sorry for your situation I understand the disillusionment and disappointment, but thought my experience may help you in some way. 
My husband was diagnosed with stage 4 colorectal cancer in January 2023, we then had had months of tests and appointments and at each one his prognosis got worse, he has metastases in lung and liver, he has a BRA F gene mutation , his life expectancy was 2 years then downgraded to 8 months after chemotherapy did not work.
His third line chemo treatment ,braftovi and erbitux, was started in Feb 24 - and it's working ! The liver tumours have shrunk enough to have been ablated, the lung tumour is gone . He is well and positive and we are living scan to scan.
I know every case of cancer is different but I hope you get some positives from our experience, whilst you are being offered treatment there is a possible positive outcome
i I wish you well
x
Thanks Mich 
