New member 1st post

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Hi. This is my first post. I was diagnosed with stage 4 oesophagus cancer on the stomach junction 10 wks ago, and also have secondary liver cancer.  I am having chemo and after 3 sessions have seem reductions in all tumours and also the lymph nodes.  I have 3 sessions to go. 

It is a small cell cancer, which is not common for oesophagus, and is incurable but since the first treatment I have got back.to eating normally.  I am hopeful that treatment will extend my life, but I am really in the dark on liver mets, my oncologist is focusing on chemo, shrinking tumours and then we will see.

I am only 53 and have an 11 year old, very fit and healthy outside of this cancer.  Wanted to say hello and see if anyone is in a similar position?

  • Hi Brysol I am stage 4 bowel with secondary liver mets. I had a resection of the liver last year and it spread again, but confined to the liver. I had 2 cycles of oxaliplatin alongside 4 of capecitabine tablets, and have just been told that one tumour has shrunk, and the other has disappeared! I hope this is of some help. I’m waiting on a Pet scan having had an MRI  this morning. The oncology doctor said I may be referred for another resection, or SABR. I was told without any treatment I had 6-12 months. I’m a fit and healthy 59 year old. Hopefully others will be along soon to give you their experiences. Sending you lots of hugs.

  • I spoke to the nursing team today, I have 2 more chemotherapy cycles ( had one today). She was quite negative in that they wouldn't consider and treatment for the liver mets. The primary tumour is being reduced and I'm hopefully will be reduced or even cleared, and the oncologist did mention targeted radiotherapy.

    I asked about a section and the nurse said that this wouldn't be considered, I think as she believes the oesophagus cancer would not be cleared and without a resolution to the primary cancer then that stays the focus.

    I will be on a 12 wk scan cycle and if it gets worse - reoccurrence, then they will discuss options.  I am a bit upset by this, but without chemo till Xmas 23, so with these positive reductions and more to come (fingers crossed) it will be longer, but that's going to depend on the next scan results. All a bit unclear! 

    Thanks for sharing, be good to hear others and help me challenge/enquire.  All the best with your battle.

    X

  • We lurch from scan to scan. I don’t have any treatment plan until the Pet scan is done and results are back. I’m getting really stressed out waiting for an appointment. I’ll keep everything crossed for a positive outcome for you.

  • Hi, I hope you are continuing to feel well.

    I was diagnosed with stage 2 esophageal cancer last October. I've had radiotherapy and chemo and 2 months ago I was told it had gone. Unfortunately,  my blood tests told a different story and today I was told I have secondary liver cancer. It is quite a shock as I thought I'd been lucky. I'm waiting on further tests to see if it has spread anywhere else. 

    Have you any advice about dealing with the anxiety? I'm usually a calm person, but this has completely thrown me.

    I do hope you don't mind me asking, as I realise you are also dealing with this desease. 

    Wishing you the very best.

  • I am sorry you are in this situation. I have a different cancer - TNBC - and a solitary liver met was found after I had breast surgery and chemo. I had an unsuccessful microwave ablation. Unsuccessful in that at my 3 month scan, not only had it regrown but I had developed a second tumour in another segment. I then went on immunotherapy (Pembrolizumab) combined with more chemo. This had to stop after 5 months as I had a major immunotherapy related adverse event causing significant organ damage. However it had led to a material reduction in both tumours, so I had another microwave ablation procedure. This time I am in remission. 

    I think what they will do depends to a large extent on the primary and on the likelihood any spread is small and contained. My primary had been removed prior to finding I was stage 4, and at that point a PET-CT found nothing else, so the first ablation attempt made sense. I think the 2nd ablation was authorised in part because my immune system had done a large part of the job, and in part because I couldn’t have more immunotherapy and there aren’t a lot of other options for TNBC that has already had 3 types of chemo. 

    Is your cancer a candidate for immunotherapy? 

  • Hi

    Yes I believe I am a candidate, but I have rhymatoid arthritis so I'm not sure what they will do. I've just had two more scans, a MRI and PET CT. Im waiting on results.

    All the best to you.