Anxiety over now having a liver mett.

Hi Nelly1955

I don't know if it's possible to "go back into remission" when diagnosed with a liver metastasis but I noticed that your post hadn't had any replies yet. By replying to you it will 'bump' your post back to the top of the discussion list where it'll be easier to spot.

You could also post this question in the bowel cancer group which is a more active group than this one.

I'm, sorry to read that you are suffering badly with anxiety and depression. Whilst it's natural when you have cancer to feel down sometimes, you might want to talk to your GP if this has been going on for a while as they can help you find ways to cope. 

x

Thank you. When I saw the oncologist he said it’s curative, but I don’t know if what if I had surgery but I was refused. I was then phoned by my chemo nurse to say a doctor was phoning about RFA.  it was one mett  I am just assuming that if it was gotten rid of it was remission. I think I need help with questions when I speak to my oncologist. I have a telephone appointment next week.thank you for replying. I’m so mixed up with this. I have a scan in about 3 weeks. I feel very confused. My daughter was with me at my last appointment. She takes notes so I will ask her what he said. I had the RFA a week ago. They did say there could be more specs but they can’t see anything yet. Just praying the one they found was the only one.Nelly x

It can be difficult remembering what you want to ask let alone what the answers were Nelly1955, so from personal experience, I would suggest the following:

• Always keep a notebook by your side and write questions down as you think of them
• Have the list with you when you have your telephone consultation
• As you ask the questions write down the answers
• If you don't understand the answer ask the consultant to explain it again. They don't always remember that we don't necessarily understand medical terms
• If possible record the conversation so that you can play it back and listen to it again
• If there will be someone in the house with you when you have your telephone consultation put the phone on speakerphone so they can be given the job of writing down the answers giving you time to listen
• If you don't already have a cancer nurse specialist (CNS) or key worker assigned to you ask for their name and phone number so that you can contact them if you think of anything else you want to ask

I have my first face-to-face consultation in over a year in a couple of weeks time so know what an anxious time it can be building up to the appointment.

I hope you get all your questions answered and, don't forget, keep asking until you understand.

x

Thank you once again Latchbrook. I only got a complete response no residual cancer no metts only weeks before. I went in for a hernia when they found the liver mett. I thought if it came back it wasn’t so soon. It was an incidental find. I saw the dr. Who did the RFA. he phoned me, then I met him whilst having my pre med. I saw him briefly when I went in for my procedure, there were a lot of people. I only saw the 2 special nurses who discharged me. The nurses said that because he was doing something else in the hospital he couldn’t go on the ward, be cause I was in the green zone to protect from Covid. Everything has happened so quick. I do remember asking him  if I would need chemo, he said they don’t want to give me chemo just yet see how we go. Which I assumed was a good thing. I did ask the nurses how it went won’t know until the scan. What they said you’ve had the treatment. So now don’t worry about it. I am on antidepressants. This treatment can be repeated, just hoped it worked. I have a telephone appointment with my oncologist for the bowel next Wednesday. I will ask him some questions. If I’ve gone in on my own I do put my daughter on loudspeaker if I’ve gone face to face. She was allowed to come in with me when I went to find out about my liver. Sorry I am rambling on. I feel scared and I want to learn to live with this disease. Nelly x

You're so right Nelly1955 that you need to learn to live with your cancer and not let your life be dominated by it.

I was diagnosed with malignant melanoma 4 years ago and I had surgery to remove it from my skin. Hopefully, it will never reappear but I am aware that in some people it recurs years later in organs like the liver or lungs. There is currently no cure, if surgery hasn't caught it in time, but I don't let myself dwell on that but instead focus on the now, and making the most of my life. The thing I have learnt is there's absolutely no point in worrying about something that may never happen as all that does is ruin the present.

Wishing you all the best with your upcoming appointment

x

thank you Latchbrook for replying. Hope I get some good news. Best wishes to you, Nelly