Hi everyone,
My dad was diagnosed with stage 4 bowel cancer with a spread to the liver in May 2018, and unfortunately he is now on palliative chemo. When he has breaks from his chemo, and the tumours in his liver start growing again, he gets fevers (temp up and feels cold).
Chemo seems to keep it under control however, his oncology team haven’t seemed to put in place any plan for this and they all seem slightly perplexed by it? He stopped chemo last Friday as he is experiencing too much fatigue, and yesterday ended up with a fever. We called the cancer centre in the morning and a nurse told us she will call back later to find out if he is still unwell, and if so he should come to the assessment centre at the cancer unit. But the nurse forgot, and the oncology doctor had already gone home so he ended up having to go to A&E. This is really unsettling for us as hospitals are currently a hotspot for coronavirus and we are shielding him as per government guidance.
This has happened probably 10 times over the past two years but hasn’t been looked at by his team and we usually just end up with antibiotics but as I said earlier there seems to be no plan on how to get rid of this/manage this as he can’t have chemo forever and his quality of life is the most important thing to us.
Has anyone else had this experience of fevers/have their teams put anything in place for this? The fevers just knock him for six, and we just want him to feel as well as he can so he can enjoy the time he has off chemo!
Hi and welcome to the online community
I'm sorry to hear that your dad feels so ill when he stops having chemotherapy.
I can't help with any experience but I noticed that your post hadn't had any response. This could be because no one else has had this experience or because the person who has, hasn't seen your post yet. By replying to you it will 'bump' your post back to the top of the page where it'll hopefully be seen by someone with the right experince.
If you still don't get any response you could post your question in ask a nurse and one of the specialist nurses will aim to respond within 2 working days.
When you have a minute it would be really useful if you could pop something about your dad's journey so far into your profile as it really helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Edit Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
