Hello, newly diagnosed and scared

Hi Jo,

I am sorry to hear of your diagnosis. Like you I am new to this site.

I have been diagnosed with Liver cancer the 1st of November 2022 and it was a shock then. My GP sent me to the Churchill hospital, had an appointment at 10.30 I think, to check my appendix as the pain was very sharp! Had an ultrasound, then a CT scan, by 4 pm I was told I have liver cancer, a 9cm legion and some satellite ones.

They put me on Immunotherapy (like chemo I'm told) since March 2023 and I'm still taking it every 3 weeks.

I got used to the idea as it has become part of my "new life", after seeking help I had 10 sessions with a mental health councillor which helped very much, highly recommended I have to say, and I am taking anti-depressing tablet.

I have been there, and still there, but I find immersing myself in music make me feel really good. I love music mainly classic but into Bob Dylan, Van Morrison, Pink Floyd etc.. and being francophone I listen to French music; some 5 years ago I discovered Malian music and the "Kora" instrument from Radio Bamako, just takes me away to a happy place 

Rest your mind when you can, I know it is easier said than done, but try and find something or thoughts that take you to a happy place for a while

Chedly

Hi thanks so much for that message. I definitely need to get used to this new situation I find myself in. Thanks for sharing yours, I was quite similar in admitted with sharp pain in the morning and by tea time and 2 scans I was taken into a room amd told the news. I don't yet know my treatment plan as just been discharged while my liver biopsy results come in. I have bowel cancer that's spread to liver but they positive it's very treatable but you do worry though don't you. All I heard was the big c word and I didn't hear anything else they said. Still, I agree music and taking time to do calming things wiĺ be good. I've had time to rethink my diet and lifestyle amd making changes. Thank you again for replying 

Hi JoJo, 

It will be fine I promise you. Great Doctors are available and I'm sure they're on your case.

My Mother is terminal with her cancer. That doesn't mean she'll die, it just means they've run out of options to treat her.

We have had approval from her GP to introduce Sour Sop and Sylagit (alternative remedies)

I've brought these for Mum and will introduce them to her daily routine along with the palliative meds. 

When options are out of sight find vision and even if some hope comes from it just do it! 

Will let you know the outcome.

Myles. 

I've been diagnosed in July 2024 with stage 4 bowel cancer that has spread to my liver, just completed my 2nd round of chemo. Try and keep a positive attitude

Hello my dad's been told he's got 6 years tops 

Hi just now heard my mum has liver and bowel cancer stage 2 devastated, she also has lymph nodes cancerous around the heart. Non treatable due to some issues with health. She looks so well it's a waiting game now to know how long she may have with a scan in 2 weeks 

Hi. I am sorry to hear about your Dad's diagnosis, at least he has one.

I have had liver cancer for 2 years now, but the team at Churchill Hospital, cannot tell me what the future, I would take now if they give up to 6 years.! I'm 78 .

Enjoy the time with your dad however much is left. Best wishes. Chedly

Same here got a 2cm on my liver diagnosed 10 th Oct waiting to here what treatment is offered, the stress of waiting is really stressing me out

Hi Hener and a big welcome from me (Jackie). I know how hard it is but please try and keep calm. Easier said than done but plenty of deep breaths and keeping busy really helped me. If you can take somebody with you when you get that appointment. I came out of mine without a clue about my treatment, luckily I had somebody with me and they wrote everything down. I'm sure it must have been a terrible shock but try and take comfort that everybody concerned has your best interest at heart. Things are moving forward all of the time. My Liver Cancer is incurable but I have been on Immunotherapy treatment every 3 weeks for almost 18 months now and I'm doing fine. Tiredness is something that any kind of treatment causes but if you take the time to rest when you can it really does help. I wish you all of the very best for you results.  Jackie

Can I ask what your diagnosis was please my mum had hers last week and waiting the next app for prognosis etc ATM they don't know where the primary is so can't offer any treatment yet, it's liver and bowel with her all very worried xxx