Hello, newly diagnosed and scared

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Hi I'm Jo, Wave  still in a bit of shock about my diagnosis of liver and bowel cancer after thinking I just had gall stones. Looking to chat for and give support. Just finding my way around this app.

  • Hi Jo,

    I am sorry to hear of your diagnosis. Like you I am new to this site.

    I have been diagnosed with Liver cancer the 1st of November 2022 and it was a shock then. My GP sent me to the Churchill hospital, had an appointment at 10.30 I think, to check my appendix as the pain was very sharp! Had an ultrasound, then a CT scan, by 4 pm I was told I have liver cancer, a 9cm legion and some satellite ones.

    They put me on Immunotherapy (like chemo I'm told) since March 2023 and I'm still taking it every 3 weeks.

    I got used to the idea as it has become part of my "new life", after seeking help I had 10 sessions with a mental health councillor which helped very much, highly recommended I have to say, and I am taking anti-depressing tablet.

    I have been there, and still there, but I find immersing myself in music make me feel really good. I love music mainly classic but into Bob Dylan, Van Morrison, Pink Floyd etc.. and being francophone I listen to French music; some 5 years ago I discovered Malian music and the "Kora" instrument from Radio Bamako, just takes me away to a happy place 

    Rest your mind when you can, I know it is easier said than done, but try and find something or thoughts that take you to a happy place for a while

    Chedly

    chedly96

  • Hi thanks so much for that message. I definitely need to get used to this new situation I find myself in. Thanks for sharing yours, I was quite similar in admitted with sharp pain in the morning and by tea time and 2 scans I was taken into a room amd told the news. I don't yet know my treatment plan as just been discharged while my liver biopsy results come in. I have bowel cancer that's spread to liver but they positive it's very treatable but you do worry though don't you. All I heard was the big c word and I didn't hear anything else they said. Still, I agree music and taking time to do calming things wiĺ be good. I've had time to rethink my diet and lifestyle amd making changes. Thank you again for replying 

  • Hi JoJo, 

    It will be fine I promise you. Great Doctors are available and I'm sure they're on your case.

    My Mother is terminal with her cancer. That doesn't mean she'll die, it just means they've run out of options to treat her.

    We have had approval from her GP to introduce Sour Sop and Sylagit (alternative remedies)

    I've brought these for Mum and will introduce them to her daily routine along with the palliative meds. 

    When options are out of sight find vision and even if some hope comes from it just do it! 

    Will let you know the outcome.

    Myles. 

  • I've been diagnosed in July 2024 with stage 4 bowel cancer that has spread to my liver, just completed my 2nd round of chemo. Try and keep a positive attitude Sparkling heart

  • Hello my dad's been told he's got 6 years tops