Hello

Hi BlueVolvo and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

I’m Anne, one of the Community Champions here on the Online Community, and although I'm not a member of this group I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.

While you're waiting for replies, it would be great if you could put something about your diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

Thank you. 

HI BLUEVOLVO, FIRSTLY WHAT A BUMMER,

Oops sorry had been in uppercase having a spat with Facebook, but back to you. I've not been in your position so cannot begins to believe how you must be feeling but I'm crossing everything for you. I can tell you a bit about some Immunotherapy treatment. In September 2023 I was started on a 3 weekly cycle of  Atezolizumab and Bevacizumab and on 22nd May I have my 30th cycle. It hasn't been a bed of roses. My problems are mainly fatigue which hit me hard as I was always on the go. Not just physical fatigue but mental. I've had very dry skin and soft brittle nails but apart from that I'm really well. I hope you well. There are so many advances in Immunotherapy treatments coming through so as I say everything crossed. Take care J x

 BlueVolvo hello, I hope you don’t mind the question but how did you find the TACE procedure and after effects? Hope you have a plan soon! 

TACE went well, side effects not too bad a little nausea, slept well, had a good results but other tumours have appeared, smaller but about 11now still remains in the liver,will be starting immunotherapy in a couple of weeks, any view's or comments appreciated..

Thank you for your encouraging words, we are trying hard as a family to remain positive.