My dad was diagnosed with HCC (liver cancer). He’s really unwell (poor liver and kidney function) but making small improvements. He has cirrhosis (had been told for years he’d kept it well under control and all was good).
A few weeks ago he was fit and well, and was admitted to hospital they think due to a bad infection which knocked everything out of kilter. now he’s been given a matter of weeks to live and told there’s nothing they can do. We’re told his liver is not strong enough for chemo etc but also the fact the HCC ‘may’ be in his hepatic vein rules out transplant or survey m. So it’s a dead end
I’m struggling to accept the fact my dad is being written off based on a few blood tests and scan. The AFP levels are low and the bloods are bad but not catastrophic.
Has anyone been flatly denied treatment only to successfully pursue it elsewhere? Any tips on exactly where would be appreciated as we’re seeking urgent second opinions
Thank you x
Hi, i have just had my 7th round of Folfox and the tingling fingers and toes are an issue but you learn ways around touching anything cold, even outside temp can make a difference. I was recommended a menthol cream to rub into in feet and hands, but only just got it. it also gives me what i call my "Elvis lip"! fatigue is also an issue, but i just listen to my body and do what I can when I can.
Hi, I have HCC and just started monoclonal antibody treatment because the cancer has likely spread to multiple sites in the body. I don't know your father's condition, but the treatments are tough and might not be appropriate for him.
Some people find a second opinion useful, but in this climate that probably means paying up to a thousand pounds for a series of tests and meetings.
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