End stage

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Hello all, I’m sorry if I’m in the wrong place but needed somewhere to vent. My mum has been fine for forever, the strongest women you can hope to meet, however,  she has seen the GP, (they kept prescribing antibiotics for a uti,) for swelling in her tummy. Eventually, she went to hospital via ambulance with shoulder blade pain, assuming it was a heart attack she called 111. When she got to a&e she had a lot of tests, they came back as her having cirrhosis and liver cancer. She has never drunk, they think this was caused by fatty liver disease? Either way, they have given her ‘months to a year’. They have said there is no treatment but to keep her comfortable. She was working until the day of diagnosis so it all seems a bit surreal. She has ‘ascites’ which I think is a fluid build up, which she has to have drained. She is still fairly independent at 63, but as her ‘primary care giver’ I need more information on what to expect, what to prepare for, what to ‘look out’ for, she is a strong, independent lady and I don’t know what she is hiding from me and what I need be aware of if I’m heading for end of life care. Someone please advise because it’s my mum and I am totally lost and I really need some advice. 

  • Hello  

    I am Brian one of the Community Champions here. I have just noticed your post has gone unanswered. I can't give you an answer myself as I have a different cancer but by me replying your post will be "bumped up" to the top of the group and be seen by more members and I hope replied to.

    Under the circumstances you have written about - I think you have every right to vent so let me give you a few ideas for help.

    * You may well find plenty of advice and help if you join this forum, link here:

    Carers only forum 

    * Here's some further information About Care and Support that you may find useful

    * There is our Support Line on 0808 808 00 00 (8am to 8pm 7 days a week - but closed New Years Day). Give them a ring - they will be able to offer lots of advice and extra support.

    I do hope the above helps and if I can do anything else for you please let me know.

    Best wishes - Brian.

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    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  • Hi there l am caring for my husband with terminal liver cancer and understand how alone you are feeling right now.

    I don't know which hospital you went to but we were told my husband couldn't have any treatment he has cirrohsis and varices. 

    Please reach out there is support available either at hospital she went to or through your GP l had to fo this and we now have a Macmillan nurse who can give you all the info you need and can chat.

    I have found the excessive tiredness difficulty keeping their morale and your own hard.

    Please ask for support. Happy to chat don't  feel alone .

  • Hi 

    I am living with terminal cancer. None treatable..The only thing you can do is be as supportive as possible. I have found that everyone knows someone or a friend of a friend got treatment and has been around for years. As I say respect her wishes as other opinions are tiresome due to the knowledge that they do not have a time stamp on their life.