End stage

Hello Dontwanttosay 

I am Brian one of the Community Champions here. I have just noticed your post has gone unanswered. I can't give you an answer myself as I have a different cancer but by me replying your post will be "bumped up" to the top of the group and be seen by more members and I hope replied to.

Under the circumstances you have written about - I think you have every right to vent so let me give you a few ideas for help.

* You may well find plenty of advice and help if you join this forum, link here:

Carers only forum 

* Here's some further information About Care and Support that you may find useful

* There is our Support Line on 0808 808 00 00 (8am to 8pm 7 days a week - but closed New Years Day). Give them a ring - they will be able to offer lots of advice and extra support.

I do hope the above helps and if I can do anything else for you please let me know.

Best wishes - Brian.

Hi there l am caring for my husband with terminal liver cancer and understand how alone you are feeling right now.

I don't know which hospital you went to but we were told my husband couldn't have any treatment he has cirrohsis and varices. 

Please reach out there is support available either at hospital she went to or through your GP l had to fo this and we now have a Macmillan nurse who can give you all the info you need and can chat.

I have found the excessive tiredness difficulty keeping their morale and your own hard.

Please ask for support. Happy to chat don't  feel alone .

Hi 

I am living with terminal cancer. None treatable..The only thing you can do is be as supportive as possible. I have found that everyone knows someone or a friend of a friend got treatment and has been around for years. As I say respect her wishes as other opinions are tiresome due to the knowledge that they do not have a time stamp on their life.

Hi, I am very sorry for what you are going through. But your are not alone in this journey. 
My father was diagnosed with liver cancer 2 years ago 3 cm in left lobe. He was 71 at that time so we did not opt for liver transplant. Since then he has undergone TACE procedure , TARE which is a radiology ablation and tumor showed no growth for 1 year. It has started growing again and have become multinodular. My father is given a tyrosine kinase inhibitor table which keeps the growth of tumor in control. He is still independent, eating well but he has become more frail, slowness has developed and have become more weak. 

The doctor has told us that he has months to live now , I don’t know how much time we have but we are focusing on staying together

The things that we are told to be aware of is to avoid constipation, restrict water. His symptoms are not very bad. He has developed pedal edema once or twice, mild ascites but he gets diarrhoea and gums bleeding and then he has to stop the medication for few days. I was told that this tablet is the only medication that can help him but this comes with lots of side effects 

I have same questions as you how the end days will look like but for now take one day at at time . Be strong in front of your mom and spent as much time as possible with her