Going through treatment alone

Hi OldBob,

Well, I hope u get a better welcome here than u did at your local Macmillan centre!

U will find ppl in the various groups are very supportive of each other, u can also ring the helpline on 0808 808 0000,  7 days a week 8am to 8pm

There's a group called Chat, if u want to talk about something other than cancer and The Room, if u want to just rant.

 The other place u might try - should  u want to speak to someone  face to face -  is a Maggie's centre, if u have one nearby.

Hope that helps. Do post again if you need any more info n one of the Community champions will probably be along to welcome u properly. I'm just another menber who happened to spot your post. You might want to put a bit in your profile to save having to repeat yourself and so others know where you're coming from , as it were.

Hello..wow I wasnt aware Macmillans was only for terminal patients...

Anyway I've got FLHCC (a variant of HCC) I've been dealing with it for over 10 years now so if you ever have any questions please feel free to reach out.

Best wishes in your treatment. Xx

I noticed your post  and your reply saying that Macmillan are only for terminal patients and I'd like to reassure you that this is definitely not the case. 

I'm sure Macmillan would welcome the chance to investigate why you were told this  so please email them at community@macmillan.org.uk with the details of the hospital,etc where you were told that they only helped terminal patients.

x

Hi Latchbrook  .. Sorry for not replying. I'm very isolated and feeling a bit depressed so I tend to shut myself off. I need some support but I cant even find how to post something, only reply. I've resolved the issue that I first posted about.

Hi

There's no need to apologise for not having got back to me sooner and I'm pleased to hear that you've resolved the problem you had when you dropped into Macmillan's at your local hospital.

Having a cancer diagnosis can be an isolating experience so getting support is definitely important. Are you able to access this now at Macmillan's at your hospital? You could also put your postcode in here and this will show you what's available in your local area.

Feeling depressed is a common problem when you have cancer. Have you spoken to your GP about the way you feel? He or she should be able to help with medication or arranging for counselling.

When you want to start a new post you need to be logged into the community. The easiest way of seeing if you're logged in is to look at the top of the screen and if you can see your username then you're logged in. You then click on 'start a discussion', which you'll see towards the top of the screen, give your post a title and then start typing in the box. Once you've finished typing just click on post.

If you can't see your username at the top of the screen then you'll need to log in first. Just click on the log in button, enter your email address and password and then follow the previous instructions.

If you need any further help navigating the site just reply to this post and I'll get back to you as soon as I can.

Wishing you a happy New Year

x

Thanks latchbrook. 

Think I've got the hang of it now. I've just done my profile which explains the frustration at my GP. I did tell a lady at the local hosp branch how I felt but instead of talking about my diagnosis i ended up talking of the loss of my family which at the time I was unable to grieve as I had to stay strong for the children. I think I overwhelmed her as I was there to fill out forms. I now feel awkward returning. 

I've just read your profile..my heart goes out to you and your daughter.

Maybe contact PALS  to see why your referral to counselling is taking so long. 

The liver board here is generally fairly quiet..One of the other Macmillan boards may be more active for you. I can have a look at the other forums and see if I can find you a more active one ( im not a regular user of this website) if you want? 

Best wishes to you and your daughter xx

Thanks for the info and welcome .

Perfect timing to wish you Happy New Year 

That's very good of you but I think I need a psychiatrist rather than a listening ear. I've held too much in for too long. I'll have to hassle my GP again. I get the impression he thinks I've left it a bit late if you get my drift. Have a peaceful and prosperous 2020

Yes I think you would probably benefit from professional help..if the GP isn't helpful speak to the practice manager and then PALS..I hope you get some help soon.

Pop back in here though If you need a moan or have any questions about HCC..I was diagnosed with FLHCC (rare type of HCC) 11 years ago so may be able to answer your questions. 

Happy New Year xx