Liver cancer

Hi and a very warm welcome to the online community although I'm sorry for the reason that you've had to find us.

I'm not a member of this group, having had a different type of cancer, but I do understand the enormous changes to everybody's life that a cancer diagnosis can bring.

Unfortunately there are plenty of others in this group who have experience with liver cancer and it's treatments so whenever you have a question just go ahead and post. If the members here can't answer it then there is also the ask a nurse facility where you can post your questions and one of the specialist cancer nurses will aim to reply within 2 working days.

I noticed that you had joined the carers group and I hope that you'll find it a supportive place to be able to have a little rant or ask how other carers are coping if you feel the need.

Sending a supportive (((hug)))

I am in a similar situation my husband was diagnosed as having a tumour in his liver last September. He had a liver resection last January and it seemed successful. Sadly a few weeks ago he was called back to the hospital and was told that the PET scan revealed that the lover cancer had become secondary and spread to his bones and that now it was terminal. Three weeks ago he started Lenvatinib and doesn’t seem to be having many side effects. He is weak and tired but is able to work for some of the week. I know the prognosis is poor and lifespan is going to be short but he is in denial. In a way I wish I was too. My husband is 47 years old. We have two teenage children and it is just so so sad for all of us. 

Hi Anna. I’ve been away from this group for a while. Reading your story is so much like my own. It’s been a year this month since my hubby got his diagnoses. It all becomes normal very quickly then you become aware of the reality of the situation. How are things with your husband and how are you coping? 

It’s so so hard for everyone in the family. I try to protect to my boys but they’re both adults and so young to be going through this. 

Im so scared of what’s ahead. X

Hi

Lovely to hear from you. It’s so tough isn’t it. The lenvatinib didn’t work so treatment was stopped half way through. The cancer had spread further into my husbands pelvis and ribs. He has just finished cycle 5 of folofox chemotherapy. AFP very high so not sure if it’s having any impact on cancer. In between the chemo life is quite normal. We are going skiing this weekend. It still hangs over us like a black cloud but trying to carry on as normal for our daughters sake. It’s quite easy to forget he is so ill when he is well. When the chemo kicks in he looks like he is on deaths door. I think rollercoaster is definitely the way to describe how we live at the moment. I just wish there was hope. I think sometimes ignorance is bliss. The inevitability of my husbands death is too big to contemplate so I spend most of my time googling miracle cures knowing full well there isn’t one. 
would love to hear a little more about your story 

best wishes 
Ana