Hi everyone, We’ve launched our annual survey for 2024! We want to hear what you think about the Online Community. The survey should take around 15 minutes to complete. The survey is anonymous. Please complete our survey here. This survey is designed...
Hi to all I have been told I need a total larangectomy for larynx cancer on other side possibly also same side but not as bad as last time ,having had radiotherapy and laser for previous cancer .this is my only option . i have been reading and am...
Hello. My Dad had a laryngectomy in 2019 and his secretions have never really settled down since. He struggles to wear his baseplate and HME as it gets blocked so quickly. He coughs a lot due to the overproduction of secretions which is really exhausting...
Hi there, I'm not entirely sure what I'm looking for here other than to maybe not feel so alone and that the struggles and feelings are normal. My story in short, is that my Dad went into hospital in April for a tracheostomy due to months of complications...
Hi I am now 5 weeks post radiotherapy I had 30 sessions, Every day I felt things were improving pain minimal, appetite returning, energy levels up, skin on neck improving. All was going well but this last week I have found myself sleeping a lot my energy...
Hi all, I am now on day 18 of 30 radiotherapy treatments for laryngeal cancer. Before any diagnosis I weighed in around 102 kg which for my height is too heavy I am 5ft 11" So I tried to lose some weight and on diagnosis I was 94.6 kg. On day 18...
Hi My husband finished 7 weeks of RT end of March. 10/6 is booked for full body scan and 4/7 we meet with consultant for results. The 12 weeks post treatment in some ways is worse than the 7 weeks of treatment. Side effects seem to be changing, some...
Hi everyone, We’ve launched our annual survey for 2022! We want to hear what you think about the Online Community. The survey should take around 15 minutes to complete. The survey is anonymous. Please complete our survey here. This survey is designed...
Hi There, My father-in-law underwent a full laryngectomy surgery 2 weeks ago. He returned home a few days ago however happiness to be home quickly turned to frustration. He and his wife are both in their 70's and learning how to comunicate again...
Hi my name is Tracy and have had my voice box removed due to throat cancer,my operation was on April this year so still pretty new I then came out of hospital to have radiotherapy which I really struggled with as I hate anything covering my face I can...
