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Had my first prembo treatment on Thursday amazing nurses and doctors as it’s quite overwhelming made me feel at ease feeling tired achy but otherwise ok hope it continues like this fingers crossed how’s everyone feeling?? take care x
Hi everyone and thanks for having me here. I have some symptoms that could point to kidney cancer. (Over the last five years or so I’ve had two cystoscopies because traces of blood were found in my urine. Both cystoscopies were negative. There was another...
Hi all. Hope you’re well I have stage 4 kidney cancer that has spread to liver, pancreas and multiple sites in the lungs. Treatment so far has been immunotherapy (a combination of ipilimumab and Nivolumab) which didn’t work for me so was only on that...
Hi all I'm waiting for my partial nephrectomy in a few weeks. Could somebody who has had a radical or partial give me an idea of what happens on the day when you arrive at the hospital until you're good to go? I'm having mine at the Royal Free in London...
I'm due to have a partial nephrectomy soon (right upper pole). What would you recommend taking and not taking to the hospital? Hospital suggests a dressing gown but that feels unnecessary to me. I'm a 47 year old man in relatively ok health. I'm based...
Hello, so far 2026 has not been my year! 4.2 cm kidney tumour found incidentally on a routine ultrasound scan in early January. Further scans showed 16mm adrenal nodule. My consultant said it was probably unrelated, but the surgical team decided to remove...
Im not new here & ive posted on a few different threads for advice but ive yet to find anyone in similar situation seem to be struggling a bit just lately, In may 2023 I had my left kidney removed after a large tumor was found & i was told it had Chromophobe...
Hi, I just thought I would post about recent activity: In September it will be 2 years since I started immunotherapy for stage 4 RCC I am on the Refine trial and receiving maintenance Nivo every 8 weeks, last week I had my penultimate dosage and my...
Hello, a brief summary. A family member was diagnosed with T3a RCC (believe the leibovich was a six). Nephrectomy in Sept 2024 and immunotherapy completed in Nov 2025. After the pembrolizumab was completed as adjuvant treatment, had an appt with the...
I had a radical left neph last June 18, 2025 and all went well. My last round of scans was in January of 2026. The last 2 weeks I have been having pains from my left testicle all the way around my left lower back, it feels like kidney stone pain even...
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