cabozantinib

  • 1 reply
  • 47 subscribers
  • 46 views

Hi all. Hope you’re well

I have stage 4 kidney cancer that has spread to liver, pancreas and multiple sites in the lungs.

Treatment so far has been immunotherapy (a combination of ipilimumab and Nivolumab) which didn’t work for me so was only on that for a short while. 

I then moved onto a tablet called Tivozanib (which is what I’m currently using). The average efficacy is about 10 months. I have been on this for about 18 months but it is starting to fail. The doctor recommended staying on Tivozanib for 3 more months as there is still some benefit to be had. 

The next treatment that they are recommending is cabozantinib. I just wondered if anyone here has any experience of this drug?  Side effects etc.   I get intermittent side effects with Tivozanib but the nurse described cabozantinib as being more toxic.   Thanks :-)

  • Hello there

    i have been on Cabozantanib as my first line of treatment since July 21 and on Cabozantanib 20mg since July 2022.

    you will find more info if you click on my profile.

     I have  experienced a little bit of tiredness and sore feet which are now Treated by a chiropodist.But everyone reacts differently don’t they.

    have had the occasional break but feel 20mg must not be so toxic for me.

    good luck with this new treatment 

    gill x