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After a full nephrectomy last year I started Immunotherapy which involved a monthly infusion of.....something I can't remember, plus a daily tablet of Cabozantinib (40mg). I had diarrhoea several times after I started and only ended up having 2 infusions...
My wife Lorraine has stage 4 RCC. One of the medications that she was taking was Denusomab. Unfortunately she has developed osteonecrosis in her jaw and is no longer taking the drug. She has had two back teeth removed. Since then she is suffering quite...
Hello Everyone lots of very helpful advice and sharing on this website - a big 'thank you' to everyone who contributes. The reason I write is that my wife's treatment seems to have changed. She has Clear Cell RCC and was put on Ipi/Nivo nearly three...
Hi my husband has been diagnosed with Adrenal cancer and metastatic spread to lungs liver and bones. His diagnosis is terminal He received this news in April after having just symptoms of back pain. We have been floored by this as he is 64 and just retired...
Hello I had an adrenal tumor removed and I am awaiting the histology results,the consultant said he would ring me but then two days later he's sent me an appointment letter to see him at the end of his normal surgery so I am a bit worried. My question...
I (56 years old) was diagnosed with a kidney tumour measuring approx. 7 cm last August. In September, the entire kidney was removed with robotic support. At the time, we hoped that the tumour was only localised and could be surgically removed. In September...
Hello Everybody! I'm a rather scared kidney cancer patient as what's planned for me has rather left me feeling excluded from the decision. I also have cardiac issues and the Hospital Anaesthetic dept have been very unsure whether I am fit enough for General...
I just wondered whether anyone on here has experienced frequent interruptions to their treatment and how that affected the outcome ? I've been on pembrolizumab since the 28th of April and on Lenvatinib since the 12th of May but due to issues re BP and...
prescribed with the targeted therapy drug Sunninib back in April this year, I have advanced RCC with a 10mm nodule on each lung plus a 20mm lesion on my pancreas. CT scan in June to check progress, Consultant phoned me 28 Jul 25 with results, 25% reduction...
My dad was recently diagnosed with 8cm kidney tumor, there has been a lot of back and forth and the entire medical team is meeting tomorrow. First we thought it hadn’t spread and were told it wasn’t metastic and then 30 mins later they said they could...
