Hello from Switzerland

That must have been a shock.  I had 2 new tumours appear in my 6 month cystoscopy.. I have just had them cauterised and a biopsy taken. I do hope that things remain stable for you. Can I ask what the side effects of your meds are? 

It started with very sensitive and dry mucous membranes in the mouth, high blood pressure and a sharp drop in energy levels. After about 6 weeks, the skin on my hands and feet began to peel. Fortunately without any pain.
After that, a kind of blister formed on the feet which severely impaired walking. With a temporary reduction in the dose of Inlyta from 3 to 5mg, these symptoms disappeared. At some point, the blisters began to grow again and diarrhoea developed.
I interrupted the therapy for 4 days in consultation with my doctor, which made all the side effects disappear! Now I have been on a dose of 4mg twice a day of Inlyta for about 6 weeks. So far everything is tolerable.

I am glad to hear it is now tolerable... it sounds a lot to cope with before they altered the dose. My friend has been on meds that were literally unbearable for her to start with but her doctor begged her after 5 weeks to persist and now she says it is nowhere near as bad. I hope you continue to tolerate it even better xx