Hello I'm jo just joined and a bit overwhelmed and want to talk to people about my feelings and get support

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Full radical removal of 2.5 endophtic tumour and left kidney.

On biopsy prior to surgery it was classed as stagec3.

Following full removal on 4th November tge histologie report stated stage 3a as gone to blood vessels. And Graded as T4 due to aggressiveness. I just presumed once it was removed thats it. If tgexwhole thing has gone am I still at high risk. I was told it was very aggressive even though small.if not what sort of forecast will I have. I have been offered immunatherspy but cant have itcas I have sarcoiditus on my lungs. Going have 6 month scans

Has anyone else had a similar experience. I am a 24/7 carer for my severely parsluzed husband and quite worried for him also

Thank you warriors 

I

  • Welcome sweetheart...i can tell ur head is whirling...i know its all very confusing and scary.

    My grade was high like yours, grade 4 aggressive. I was told all was removed. I was told the grading was the chances of it coming back. And if it did it could be more aggressive. 

    I think because u are going to be seen in 6 months instead of 3 is a hopeful sign 

    Have u seen an oncologist yet. 

    Now whether its ur renal doctor or oncologist team u will have been given a phone number of your team of nurses. Give them a ring, explain your concerns. It is usually an answer machine, and with the strikes it may take a day or two to get back to you.

    In the mean time...DONT READ ANYTHING ON THE INTERNET THAT ISNT FROM A GOOD SOURCE IE MACMILLAN OR CANCER UK...i say this because most of stuff is either from abroad or just rubbish..I learnt the hard way.

    I know ur very scared, but settle for a moment...your cancer is not aggressive,  just the grade number is aggressive...your nursing team will set ur mind and explain better. 

    Take your time to settle to relax for christmas...all of us on here get these awful anxiety feeling, every time it's scan time....

    Mine are due January,  I am anxious,  mind whirring, but I won't allow it to spoil christmas 

    I say again, 1st port of call is that one to your nursing team. If not available speak to Macmillan, they are very caring.

    Sending u huge hugs and much love

  • Fleabane's words are words of wisdom. Don't scare yourselves silly trying to make sense of Google or Duckduck or Safari etc . Most of the advice for cancer is outdated and irrelevant to you and will set you backwards on your journey.

    Sure, seek definitions of an unfamiliar word or procedure but that's actually useful..

    Google and friends are the worst doctors in the world., never trust them. 

    Yes, I believe Fleabane summed up nicely and if course you mustn't let stupid cancer spoil your Christmas. It's just a small part of the bigger you. Right? 

    Bert

    "Eskimo. Arapaho. Move their bodies. To and fro."-- Ian Dury.

  • Thank you so much  will keep updated