Well, have spent the last few hours reading the excellent and supportive posts on here, and it is really heart-warming to witness such an outpouring of sharing and caring! Thanks to this site and the contributors on here, feel far more positive about my illnesses. In synopsis, veteran of 8 ops, all gynaecological, thanks to endometriosis, and when I finally had a hysterectomy, joked with the surgeons to pop my uterus in a jar pf formaldyhyde, put it next to my bed, and when I woke up,, say 'Gotcha!. Obviously this never happened, due to it going to Pathology, but thought that would be my last ever major op! Not so, seems I have Bosniak 3, which is why I joined this forum today
Sorry, I do go on so!!!! But after 40 years of ops - all to try to have a child - which I never was able to, thought that is the last time I'll be wheeled in for surgery, until the 16th August, when they discharged me with my notes.
Bosniac 3 is my cancer - though I can't actually say that, since all I have are the discharge notes from ten days ago, when I had a MRI scan. Got home, and being the type try to be as best informed as I can, scared myself stiff by googling it all night! So, I can't say, if it is benign or malignant, but from the reading, sounds a bit gruesome as does my thick-walled Gall Bladder! Discharge dr didn't say much, but then, neither did I ask anything, so my own silly fault for not having the confidence to ask, but they were soooooo busy! From what I've gleaned only from my own research, for I'm no doctor, I won't know until I get a referral to Urology which I am waiting for. Discharged on 16th August, just to set a time scale for others in same boat as to wait times. Varies round the country so it's a waiting game.
Apparently, they grade by size: I don't know anything yet, but having lost a stone, and with no symptons, other than recent blood test showing rise of WBC and the sudden onset of loose stools and tummy ache, it came as a bit of a shocker!
Thank goodness my stomach ache was so bad I took myself to hospital and that they did a MRI scan. So to other people having similar symptoms, get checked out! Least I'm in the system now.
I can't get over your own stories and how positive you all are! Well, I'm positive too, though dread the journey to come: honestly thought when I had my hysterectomy in 2019 that would be the end of my ever having to deal with something serious again. But never mind! I don't even feel angry, which i would be the normal reaction. The only thing I'm angry about is that when I had the first niggling tummy ache, around April last year . I finally managed to get an appointment Mid-April, but they phoned me up to cancel! Locum was not coming in that day because he was ill!!!!! By then tummy ache had almost dissipated to just a dull ache, but came back again with a vengeance. Finally saw GP early August, but she just dismissed it as a tummy bug!
I just knew it had to be something more serious than that - I don't know how - gut feeling, I suppose, excuse the pun, so called an ambulance to A and E, and after a 5 hour wait, was admitted. I'm really not one to exaggerate pain - well, after having Endometriosis for 40 + years, think I have a high tolerance to pain. But to all of you out there, if you think there is something wrong, please go and get it checked out!
I am a tad annoyed that this could have been picked up in April last year had they not cancelled. I take it back, that I'm not angry!!!!!!! Partly my fault though: not being naturally assertive and besides my symptoms came and went and not consistent. Having said that the GP I finally got to see in August dismissed it as a tummy bug!
The good news is that Brosniak is 'slow growing,' I suppose in comparison to other cancers, but it makes me wonder if the delay in actually getting a GP's appointment sooner, might have meant it was just a grade 1 or 2. Guess I'll never know. Just grateful it eventually got detected.
Have to say all NHS staff in hospital were great, short-staffed as per usual, but always smiling and cheerful. Just about to post them a huge Thank You card.
So that's my story so far....... good luck to anyone reading this who has been going through/have gone through KC. Stay brave and strong! Thank you to all on here whose stories have been both emotional and educational to me and given me a lot of solace and comfort today. I feel humbled and almost embarassed by the self-pitying theme that runs through my long-winded post! I wish everyone of you and your families and friends all the best with your individual journeys.
Isn't MacMillan great to give us all this platform! Thank you, MacMillan
Love to hear from anyone who'd like to chat. I'm Luciana, 63, from the South Coast. Bye all :)
Morning, TillyV. Many thanks for your reply: much appreciated! Just viewed your info, and you are coping with both KC and Bladder Cancer. Brave lady! I've been on here most of the day - well, yesterday, given the time now - and have read many a post to which I noticed your kind and supportive replies. Yes, this is indeed a very supportive and compassionate site. Glad I found it! Another Southcoaster, eh? My house is in Southampton, which has grown so sprawling and busy these days. I'm quite envious of your location near Chichester. I love the quaint villages such as Emsworth and oh, the name escapes me, begins with a B! The village with the church on river front and tourists often get cars stuck on the beach since tides come in so fast!!!! Shall have to google it now, since that will keep me up all night trying to remember! Bosham, that's it!!!!! My body may be falling to pieces but at least I've got a few grey cells left!!!!!
Hopefully, chat again soon - now how to log off, zat is ze question ( complete computer phobe here who suddenly did a German accent!!! Ha, ha!)
Why has the send buttton disappeared into the ethers? Oh dear - I'll just stay logged on and tackle the navigation of this site in the morning. Night :)
Well, going now, thanks again for replying, Tilly
Found it and seems to have sent: that took ages! Mind you, am using an old decrepit PC, that has hissy fits all the time, much like myself. ha, ha! Night
Yes, I have bladder cancer that went to the kidney and is now in the bladder again sadly. An interesting Autumn ahead with a few hospital visits I actually live in Emsworth and I visit Bosham frequently! My happy place sitting watching the water, seabirds and and boats! Keep as positive as you can. And keep popping in here.. We aren't the only ones not sleeping at this hour I am sure
xx
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