Chromophobe renal cancer

Hi Clarabella and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

I didn't have this type of cancer, so can't share any experiences with you, but I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.

Thank you very much for your reply. I hope that someone with the same type of cancer will add some infos about this rare type of kidney cancer.

Hi - I've done a search on who has posted about chromophobe renal caner and I'm tagging folk here for greater visibility Arlene.W Lollym Asheran .  All the best. 

Thank you Mmum! 

Hi , how are you ? I’ve just been diagnosed with chromophobe after a full nephrectomy . No further treatment just 3 monthly scans for a year , then 5 year monitoring which really surprised me . Any info would be gratefully received 

Hi! Sorry, I did not read your message before. I'm very well, just had my CT scan that came back clear. 

In my case, I had a CT scan 3 months after surgery, then 2 scans every six months and next scan will be in 9 months. I too will be monitored for 5 years.

Be strong and don't panic with the scans, recurrence rate is very low with this kind of cancer. Wish you the best

Huge thanks for replying especially today . Today I had my First scan ! Spooky !!! Glad you are still all clear , it really gives me hope going forward . Take care . Xxxxx