New diagnosis with more waiting

Hi Starbloomb18278 , not too many tips but plenty of love and hugs.  I got my kidney cancer diagnosis back in 2018.  Similarly, I had a kidney removed, along with tumour.  Having one kidney has not bothered me.

Back in 2018, I simply trusted the doctors.  I never doubted that I would get through it.  Try not to dream up problems which don't yet exist, your doctors are amazing and really do have your best interests in their hearts.

Best wishes.

Hi SandyN thank you for your reply and for the love and hugs.
your so right they will do everything they can to help I will have to put my trust in them a little more. I hope tthis is the case for me to manage with one kidney.  
Take Care xx

Hi 

im so sorry to hear you diagnosis I was first diagnosed in 2020 during covid and like you and so many other it was found through and unrelated scan. This time your in now is a really scary time the more you read the more you worry and day feel ong and weeks like months.they will move very quickly with you i had two months from diagnosis to operation. Once the clarify what the are working time will move fast. Having one kidney makes little or no difference to life. I’m currently on half a kidney and again it’s made little difference slightly to refer with the half but still the same gfr. 
connect with family and friends if you can keep them aware of your journey you will need some support after surgery and believe me sharing the journey helps them too. As a single mum it’s tough enough and you get used to doing everything and not even noticing it ( been there) so use the planning ahead skill as your super power, link in with services they offered it’s a strength to ask for support when it’s needed. Take good care of you and use the forum as you need. My thoughts are with you. 

HI Starbloom

You've had some great replies to your post so far!

This early time, waiting for further scans and a definite treatment plan is the worst part of this whole experience, a lot of people say this. My advice for coping with this waiting period is to try to focus on doing things that will distract you, and that you enjoy. As a single mum, I guess you are kept pretty busy!

Worrying about it is normal, and understandable....but worrying about it all doesn't actually change the outcome! And it puts your body under stress, so doing some simple relaxation exercises, or going for a walk can help to keep you calm.

If you search on this website, there is advice from Macmillan about going to appointments, dealing with worry, being diagnosed etc etc. It's really helpful to have the phone helpline too....they don't mind how often you ring!

I wish you well, and hope you'll keep posting. Let everyone know how you get on!

xxxx Kate

Ditto everyone  else  has  said -  easy  to  say,  but  try  not  to  worry.  No  point.    It's  just  a  waiting  game.  Let  us  know  how  you  get  on.

Hello,  Kate -   any  luck  with  finding  an  Adrenal  specialist.  Have  you  decided  on  chemo  yet?    Hello  to  Tilly,  and  Quinn - one  of  you  was  kind  enough  to  write  and  tell  me   the  Private  Messaging  service  was  now  working  again.  But  thanks  for  that.  Not  tried  it  yet.  Can  someone  email  me  please    to a)  see  if  this  sent b)  it's  be  nice  to  catch  up!!!!

Love  and  LIght  to all  on this  journey.  Bye  for  now  ;)

People cope in different ways, I think. Some people try to put it in the back of their mind but I was focused on finding out as much as I could about the disease and the operation. I feel more confident when I know what I am facing.

Then I started getting ready. That helped me to feel more in control.For example, I bought a soft front fastening bra, soft stretchy big knicks,  a button through dress and slip on shoes for easy dressing after the op because I wanted to be as comfortable and self reliant as possible. A nurse said she had never seen any one as well prepared!

My diagnosis and operation were in lockdown so I had plenty of time to think while waiting and not many distractions but I was lucky in that I have a very supportive husband. 

I am waiting for the result of my latest CT scan so the anxiety doesn’t stop but I have kind of got used to it. I have faith in my medical team and that helps. 

I had exactly the same diagnosis 8 years ago, I had CT scan results the day after with no evidence of spread, but it did eventually 7 years later but it’s under control