Hello all,
firstly I would like to say what an amazing, strong, supportive group of people are within this community. I started reading posts before Christmas when my husband started going for tests.
So we attended a urology consultation yesterday and looks like my husband has a tumour on his kidney! We are now awaiting a CT scan which is going to feel like the longest wait ever. We are preparing for worse but praying for the best as iam sure so many of you are.
Does anyone have any advice on how my husband can manage at work with this almighty weight on his shoulders as it doesn't just effect physically byt mentally to. It's so hard to carry on with normal life with this going on, but have to for our children.
We know at the very least my husband will have to have tumor removed but will have to wait for CT results to know about further operations or treatments. We have a 3 year old and 5 year old and not to sure what to tell them or how to approach it all. My dad had cancer of lymph nodes and has now been a year in remission we just told them grandad was poorly and they saw him littlewhen he was feeling ok. We are going to try our best to keep things as normal as possible for them but with hospitals stays and treatment the future is very uncertain so just want any advice or names of books that could be recommended!
My thoughts and best wishes are with all those who are on their journey , the patients and loved one, keep fighting, you got this!
Hi - my kids were much older, 17 and 20. We waited until (a) we had something to tell them ie I had started treatment and (b) after my youngest had finished an exam cycle.
Under 10s are much more delicate because their level of understanding doesn't match the level of an adult. I would suggest you need to wait until you have the CT scan and know the response.
Regarding the waiting game. We all hate the waiting! With mine I had a ballpark time frame, usually advised by the person managing that consultation eg GP, urologist . . . usually 2-6 weeks. I took it day-by-day, and every weekend I ticked off a week in my head. The first "target" was the letter witth the date. Then the next target the appt. I found working helped because I would sporadically think "oh I haven't thought about the cancer for a couple of hours". When I got a letter or a phone call about it, I was like a kid at Christmas and marked that off as a step nearer the appt or more info or perhaps even answers.
This time now, is the worst bit. Once you know how they propose to manage it, it's so much easier and you find you will get into the swing of it. Then you will know that something is being done about it and that is so much easier than waiting for info or the unknown.
You could consider time off work. I think everyone does this at some point. But I found I still thought about it incessantly! Time really helps.
Thank you so much for your response and advice regarding the children. They know daddy has a poorly kidney, but I think you are right in waiting to hear the CT results before we say anything further.
I agree all we can do is take it day by day and once we know what is happening then I think we will be able to prepare ourselves and little ones more.
I hope you are now on the mend and able move forward abd look to the future.
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