Hi all new here

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Hi all new here, im darrol and im 36.

I was diagnosed with kidney cancer in September last year and had surgery in December. Has anyone had it where it has spread to there lungs looking for some advice if possible 

  • Hiya sweety...yes mine spread to both lungs and adrenal gland after my nephrectomy.  However, although advised it incurable it is treatable.

    I am not on any treatments because the nodules are still small. Scans every 3 months. 

    Support has been very good and apart from fatigue I am doing ok

    Hope that helps..

  • They did a chest ct and found atelectasis in both lower lobes and a nodule in the right upper lobe I don't have my urology appointment till the 25th of this month but like we all know the not knowing is the hardest part 

  • Oh and also a 7mm heterogeneous at the surgical bed 

  • Hi. I had an 8cm tumour left kidney. 21/6/24 removed. I have been told there is a very small nodule right lung. They tell me it's nothing to be concerned about but wasn't there before...  I worry but nothing I can do. I'll wait my next CT scan and consultant appointment with the results. (5 year monitoring) 

  • These are all new findings since my last ct in November I have atelectasis of both lower lobes aswell and a new 7mm heterogeneous found in the surgical bed which I can gather is the cancer back 

  • Hi, 

    Slightly different scenario.  Mine had spread to the lungs by the time it was diagnosed, so too late for surgery.  Instead I had a 2.5 year treatment of immunotherapy and a trial vaccine for a year.   Lung mets are no more and the original tumour has shrunk from 59 to 23 mm.  I have regular scans (every 6 months) to monitor the situation.  I was there yesterday, in fact!  

    Your youth should work in your favour.  I was 52 when diagnosed in Nov 2021.  

    There's lots of treatment options for kidney cancer spread to the lungs.  Lots of immunotherapy options usually.