Hi all, new to group

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Hi Wave 

I was diagnosed with stage 4 RCC in Sept 2023. I had a 10cm tumour on my kidney and 4 mets in my lungs it was found by chance and I didn’t have any real symptoms.  I was 48 at the time and I have two teenage children. 

I went in for a full nephrectomy in Oct 23 which had to be abandoned due to attachment to the duodenum. By this point I was in shock and feeling pretty awful. I met my oncologist in Nov and started immunotherapy in Dec 23. I had Ipimibulab and Nivolumab. 

Since starting the treatment it has been passed twice due to significant reactions.  I have had a 12 types of reactions to date including reactive arthritis and colitis.

Whilst these have been challenging the good news is that the treatment is working. My lungs are now clear and my kidney tumour is 4cm. I am due to go back for surgery next week to try to remove the kidney and tumour again. 

When I started this journey I was in a very dark place but with the support of my family, friends and communities like this I realised that I am strong and I can fight this.  I am a warrior and remind myself of this on a regular basis.  

Sending positive energy and strength to all the warriors out there fighting this disease MuscleGrin

  • Really positive news, best wishes for the upcoming operation.

  • Hi Nony,

    This is brilliant news, really pleased for you. I love positive news. I hope that the surgery final goes ahead for you next week. Please keep us posted. Take care XX

  • Thanks for the positive energy ... I certainly need that right now.  Great to hear the positive results you have achieved, despite the nasty side effects you experienced.  Best Wishes for your operation. Let us know how it goes, if you get chance.

  • Such positive news and so pleased you’ll finally have your surgery. Please keep us all updated and you are definitely a warrior for everything you’ve been through! Keep strong and we’re all behind you x 

  • Brilliant news here. You're right -- its a war and you *must* be the best warrior you can be. Its clearly working in your case! Merry Christmas to you and yours.