Kidney cancer diagnosis

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Hi all, I've had a whirlwind few weeks. I had a routine ultrasound on 9/10 as I have diabetes  and the doctor  was concerned about liver disease, so I was sent for that. On 15/10 I had a call from hospital  asking me to go for a CT scan that very day. So went to that, saw the consultant the following  day and he confirmed  I had a tumour on my kidney, couldn't  say if it was cancerous or benign and I was sent home... stressed out for a couple of days and then had to go back for a 2nd CT scan on the Friday. Then on 30/10 saw the consultant who confirmed  I did have cancer.  I've had no symptoms at all. It was just an ultrasound  looking at something else that led to this. I'm still in shock. My head feels like it's in a constant fuzz, I had almost 2 weeks of not knowing and then had the news. I'm booked in for keyhole surgery on 15/11 and I'm so terrified, I'm 50 and have never had surgery before. So again y head is all over the place.  I've got a 12 week sicknote from my gp  so don't have to worry about work  or anything  but I'm someone who is always doing something so is going to be very hard to just sit and relax and get well again. I'm a single mum, my kids are 16 & 2 so will have my mum and sister coming to help out with the kids.

I think once I get there next week, I will finally  realise what's going on as it's definitely  not sunk in yet. I think I'm just on auto pilot at the min.  I hoping my recovery  time will be okay. I've been advised I'll have a check up on 6 weeks and I'll have to inject myself  for 28 days after. 

Thanks for allowing me to join this group chat.

  • Hi, it seems to be happening very fast for you, i had a scan on 15/10 waited a week for a ct scan, they said its probably cancer 6.7x6x6cm lump, have to wait till 19/11 to see a consultant to talk about surgery so no idea when it will hapoen or what surgery i will have, waiting around with no information is the worst part, but at least they are sorting you out quickly, hope it all goes well for you. 

  • Sorry you are also going through this. I had almost 2 weeks if not knowing and I think that has messed  with my mental health more than everything else that's going on. They said it was around 4.3cm when they did the 2nd ct scan.  I'm worried about the surgery as I've never had an operation  before. But I've been reassured that I will be okay. Hope everything  goes well for you too. I'll be thinking of you  x

  • I’m glad you have someone to help after the op. It is natural to worry and I reckon that everyone who ever had a diagnosis of cancer goes into a spin of anxiety. The good news is that they have processed you quickly.

    My own experience of the actual op was that it was not as bad as I expected. With a Laparoscopic Nephrectomy I had multiple small scars but they healed well and I was lucky because they weren’t as painful as I expected. I am the kind of person who researches beforehand so I knew what to expect and prepared everything as much as I could before I went into hospital, to make my life easier while incapacitated.

    Best wishes and I hope all goes well for you. 

  • Im in the same boat as you, not had an op before, thats more worrying for me than the cancer, ive been knocked out to have a camera inside me and that was bad enough. If im in for a few days ill be on my own as the hospital is 60 miles from home and my partner is disabled so cant have her visiting everyday. Really hate the waiting lol

  • So sorry you’re going through this but at least the cancer has been found and they’ve acted so quickly. 
    I was exactly the same as you, went for an ultrasound for something else and found a 5cm mass on my right kidney. I too didn’t have any symptoms. I had my whole kidney removed in Sept by keyhole and has been very successful. I’m 52 and went into the op fit as I workout for a living and after 8 weeks I was back at the gym and teaching again. 
    Thats fantastic you have your Mum and sister to help you when you’re recovering and make sure you try to fully relax in order to heal. I watched loads of tv, tried a sewing project and walked little distances everyday.
    Take all the help you can and try and see it as a positive as the cancer was found and you are going to recover from this.
    I hope that helps xxx 

  • In general most people seem to say the surgery is not as bad as they feared. Normally they are home again in a couple of days. I was. The vast majority of cancer patients at least in this forum seem to be having very positive outcomes. Touch wood. So yes. It is a traumatic time but things do improve as you come to terms with it. Best wishes.

  • Hi, thanks so much  for this. I'm not usually someone to sit about and not do much. So me taking it easy I think will be the hardest part for me. 

  • Hi all. Everything  went okay, had the operation yesterday  15/11 need to stay in an extra night just because I'm not progressing as much as they would like.

    I was quite sick after the surgery so that was a concern. And they only took the tumour so I still have at least 90%of my kidney, which is a good thing. 

     The pain is the worst I've ever experienced, but it's being managed for me, it was via a drip and I had morphine. Now it's just paracetamol. 

    The only issue I now have is actually  moving around as the pain is still quite bad. But I'm sure in time it will ease off.

    Looking forward to going home and getting into my own bed. There's always too much going on in hospital to be able to sleep properly. 

     Thanks for all the lovely messages, I really appreciate  it. Xx

  • That’s good you’ve got the op over. I had mine last Sunday so I’m a few days ahead of you. The pain is easing now and everything looks to be healing nicely but I’m so tired! Spending most of my time in bed. I go down for a change of scene and 15 minutes later I need to go back to bed! Gonna take a while I think. Good luck with your recovery 

  • Glad it went well for you, hope you start to feel better quickly, helps when you can sleep in your own bed, lots of rest should help. 

    I see the consultant on Tuesday so should know whats going to happen soon, it will have been the longest 2 week wait ive had. But i imagine the wait for surgery will feel a lot longer.

    Had another test for abnormal cancer cells a week ago but no results yet.