Has any one been on pembrolizumab

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Hello ,

I have just had my kidney removed due to stage 3 cancer /grade 4 .

I have been offered to have the drug pembrolizumab. 

As I am now high risk of the cancer returning. 

Has anyone had pembrolizumab . I have a week to decide to have the drug.

Would appreciate any feedback  about side effects. 

  • I had almost all the possible adverse reactions. After first infusion I had high blood pressure, got tablets for control it. After the second infusion my thyroid stopped working, I got tablets to control it. Later I had pneumonitis four times, I got high dosage steroid treatments four times. Last week my doctor stopped pembro because of my lung is too sensitive. And I also have minor side effects. These are the negative things.

    BUT despite all this suffering, my CT scan showed that all my metastasis shrank or disappeared :)

    Recently I have only lenvatinib tablets and waiting my lung become healthy again, then we continue pembro.

    I am very happy that I got this treatment. Everyone tolerate it in different way. 

  • Hi.

    Thankyou for your quick reply. 

    It was very helpful.

    Hope you are able to resume your treatment soon.

  • Hi

    i am currently on my second round of Pembro , due a third in a couple of weeks . So far I have been all good Blush no adverse effects a( slight headache for a few days after infusion) and living life ! I am aware that the affects can worsen the longer you are on immunotherapy so I’m taking the positives and rolling with them xx hope this helps xx

  • Hi,

    Thanks yes it helps, helping me make a informed decision Thumbsup.

    Hope the rest of your treatment goes well .