10cm tumour

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I’m a 39 year old female, went to the doctors with a feeling of a mass in my right side. Had an ultrasound showing a tumour of 10cm, I’ve seen the urologist who strait away is saying it’s cancer and that I will need my kidney removed and that I need a CT scan to see if it’s spread. I’m going out of my mind. I have no symptoms at all apart from the lump itself. Has anybody had a tumour this size that hasn’t spread? 

  • FormerMember
    FormerMember

    Hi, yes a CT scan revealed that I have a 16cm x 10cm x 12cm mass and initially they said it had spread to my lymph nodes and maybe liver.

    I just didn't know it was there and it was only when getting lots of blood in my urine I got it checked out. So it may have been there for a number of years silently growing.

    However after an MRI scan I was told it is T3a and not metastasised. I am now waiting for a radical nephrectomy.

    I hope your scan reveals things are not as bad as you think, the waiting for results can be stressful. Keep your mind occupied and try not to worry.

  • Hi mine was also 10 cm told cancer straight away ,only sign was blood in urine but other wise felt healthy, had an open radical nephrectomy  which takes time to get over but listen to body and do need to rest alot

     That was 16 months ago having 6 Monthly ct scans but so far everything is going well hadn't spread the worst part for me now is the wait between scan and results but I do count my self very lucky 

        This group I found have helped me alot so stay in touch it's hard to stay positive but try to take every day as it comes ,sending hugs 

  • Mine was of a similar order of magnitude. No symptoms at all and no spreading thank the Lord.

    • Thankyou for your reply. Everything I’m reading is suggesting the worst outcome. I had no idea I had it either until I felt a lump. I’m so glad yours hadn’t spread. I’m really hoping that is the case for me. 
  • Thankyou for your reply. I’m glad things are going well for you. I have no symptoms so hopeful it hasn’t spread but the size is concerning me and the urologist didn’t fill me with confidence. Just the long waiting game now. 

  • I’m glad to hear that. No symptoms for me either. It’s just so hard to believe this is happening when I feel fine. 

  • Hi Disney - sorry to hear about your situation; briefly my story is as follows.

    Routine tests revealed a UTI last September; they wanted an ultrasound and found something, then sent me for an MRI. FYI I didn't have any symptoms of ill health - not a day off sick in 15+ years. 

    A 5cm growth was found on one of my kidneys and I had a partial nephrectomy last October at Charing Cross. Not sure if you're aware but partial is a more complex involvement than radical so that's a plus point...well, kind of!! The operation took c4 hours and a team of 9 I gather - all robotic as well.

    The specialist said that it had probably been there c5 years. I consider that to be a bullet dodged and things could have been a lot worse.

    This was my first ever serious illness and I simply put my trust in the system and the people.

    4 months on and I feel good - the early days were tough, I won't deny, but so far so good.

    I hope that helps but do feel free to ask any more questions...and try not to Google too much!

  • One thing I would add is that ultrasounds aren't always the most accurate when it comes to sizing. In my case, the ultrasound sized my tumor at 13cm, the follow-up CT scan sized it at 10cm, however, when the pathology came back after I'd had a radical nephrectomy, the tumor was sized at 7cm. 

  • Thankyou for your reply. No spread thankfully but the CT actually measured it slightly larger at 11cm. Having my op on Wednesday. How did your recovery go? 

  • It went very smoothly! I was up and walking within 12 hrs and was discharged from hospital after one night. I felt sore for about 10 days but it was completely manageable with tylenol and gabapentin. Hope all goes well with your op. I was really worried about the pain ahead of the op but it really wasn't too bad at all :)