Hello

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I am 5 weeks post surgery .  Kidney & ureter removed. Very blessed that tumour was non aggressive. Will need immunotherapy treatment.

Recovery from surgery going well.

Had severe post op complications. Pneumonia & sepsis.

Horrific setback. Discharged from hospital twice. Readmitted twice  . I was seriously ill . Treated with IV antibiotics. Teslia? For 17 days in total. 

My experience has been so traumatic I still feel numbed by it. I know I haven't even started to process all the feelings .The physical recovery from the surgery and the complications has been mammoth. 

No energy or capacity to process the emotions.

Seems as if physically I'm getting little bit stronger each day. 

But emotionally I'm afraid to address what has happened to me in space of 3 months . 

Everyone says I'm so strong. I'm not.  It's an act. I feel paralysed emotionally. I'm frightened  and confused inside my head. 

I've applied for counselling with Macmillan today.

First step.......

  • Hello, so sorry to hear what you have been through….getting through the shock of the diagnosis and the surgery is one thing …..but  sepsis is awful.

    Its good that you have posted on here and even better that you have organised counselling.

    Just take one day at a time, rest and be kind to yourself.

    Sending you a big hug,

    Jules x

  • Hello Jules.

    Thank you for the big hug.

    I have a very supportive husband & family but I feel only someone who has been given a cancer diagnosis and had the kidney surgery can possibly understand all the mixed up emotions and thoughts and fears that keep going through my head.

    You sound like a lovely person being so sensitive to others on their journey.

    My journey started 3 months ago and the speed with which the surgeons have treated me has been amazing.

    The day before I was admitted to A & E hemorrhaging & unable to pass urine I was out playing 18 holes of golf. Perfectly fit and healthy.

    It's so good to talk to you Jules.

    Keep strong x

    Belsize

  • Hi, so sorry to hear about your troubles, I am nearly 3 weeks post op after having right kidney, ureter and bladder cuff removed. So far other than a bit of catheter trouble after the chemo wash I have been ok. I do know how you feel, back in July we were going to buy a house, no symptoms except weird blood test results then it just seemed to be bad news on a daily basis. My husband has been amazing but I did find myself filtering what I said to him as some of what was in my head really needed to stay there.... Try to stay positive, hopefully you are now over the worst and if you ever need someone to speak to there are lots of lovely people on here...Hels x