I lost my right kidney in May 2000, having had a 15cm tumour attached to my right kidney so had a full nephrectomy. This 8hr operation was done and I was out of hospital within a week Back to work in 6 weeks, all done and dusted. Cancer returned 2017 to remaining kidney as the primary and 4 mets in pancreas. Inoperable so started on Sutent which put me in hospital, been in pazopanib for four years with good results so far. I thought to myself this morning I can’t do as much as I was able to this time last year in fact I feel so much weaker so I dread to think what I’ll be like next year. How do I feel I hear you asking. Well I just cleaned the bathroom and I feel like those marathon runners look when they are running towards the finish line and end up collapsing, a bit dramatic I know but I really need to sit down. I am breathless and my voice is hoarse, my daughter will say immediately, you’ve been doing too much mum you can hardly talk if she phones, so need to rest. Not an easy thing to do if your the type of person that never stops doing something, so I’m not looking forward to what lies ahead. Having only one kidney you tent to take extra care of it, I stopped smoking in 2016, never been a big drinker but don’t drink any alcohol these days so what’s left, diet !! Down to one meal a day so nothing more I can do as I have no energy for exercise, so really just have to be thankful for not suffering and just still breathing so I can see my beautiful daughters and my two grandsons. Take each as it comes I say and do what you can, when you can.
Hi, just wanted to say I know how you feel. Similarly, kidney and breast cancer in 2016, kidney out and lump removed from breast after chemo then radiotherapy. I was diagnosed late 2019 with stage four kidney cancer with mets to lung, scapula and now liver. Pancreatic one has shrivelled and gone. Actually had the kidney cancer since 2017 but it was missed on two scans. Like you was always busy doing four or five jobs..various cleaning jobs and one as special needs supporter. I gave up my main job a few months back, just couldn't clean for four hours a day, up and down stairs etc. I also sit down after cleaning the bathroom! Helped my daughter with her house move in December and by 4 o clock had to go home as I felt sick and dizzy with tiredness. I think we do feel it if we try to do something the same as we did before the cancer. It does make me a bit sad and frustrated sometimes. I too get out of breath just climbing the stairs some days and making the bed! Others I'm ok. Hope all goes well for you. X
Thanks for reply. I don’t know if you wonder like me, if this is how I feel in a year how much longer do I have? And how does one feel when the time is near. I intend to write how my body feels right up to the end. I find on the FB cancer sites, one minute your having a conversation with someone the next month they’re dead, and I wonder were they in pain or suffering when I was talking to them and they just didn’t say, or was/is it going to be a sudden passing! Sorry if I’m too morbid. But my family not on here so I can say what I feel. Hope your ok too xx
Hi Alyson, yes I do feel that. I feel I've lived end of life second hand really as my best friend died from ovarian cancer Christmas day 2020 and we messaged every day. The last six months of her life was difficult but she kept going with chemo. It was only when her hernia ruptured and they could no longer give her chemo or any other treatment that she went downhill quickly. She then lost her mobility and only had about 10 weeks left. Her passing was very peaceful though and just as she wanted it in the hospice. I think that's given me an insight..someways good, someway not..into the process although of course we're all different. Don't worry, I don't find it morbid at all. You need to say these things as often I find we're shut down by people who find it too scarey. X
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