Hi so it's my mum they found a lump back in June on her right kidney they gave her a few ct and said it was in one place so that was good she had a few bloods transfusion a few weeks later they then decided that her left kidney had a few problems so they fitted a stent as there was the tube was narrow so that happend all good they said it was all fine anyway few more ct scans few more appointments and they said it was okay and the solid mass wasn't growing any bigger and was in one places anyway few weeks passed mum seem to be getting temperature feeling ill very tired hospital call the next day ask about the temperature tell then she has hot like sweats dripping with then so they tell me they've looked at the ct and think she has a collected abscess around the size of a gratefruite so it maybe mimicking a cancer so they would like to fit a kidney drain in to get the puss out so we think great okay so go to hospital following day for drain to be done mum then spends 9 days in hospital as she starts spiking so they start her iv antibiotics she gets better they send us home with the drain still in 5 weeks mum's at home with the drain go and see the renal specialist on the 5th week for an outpatient appointment he looks at mum says they think the drains doing what it's meant to be doing but she hasn't had no ct in 5 weeks just left at home with drain in anyway consultant says they will hold out abit longer to see what's going on week later I have to call as mum's spiking temps and I'm getting worried give us a time to come to the hospital arrive bloods done shows white blood cells are really high say there going to keep her in she start her on iv antibiotics jenamicine if that's how you spell it she fosnt seem to be any better so they say that Friday just gone there going to operate to remove the kidney she had no test done why in hospital just a ct the night befor she going for op so they come Friday and say that they need to do the operation as 3 new things have pooped up over the week still telling us that it's a real bad collective abscess sorry forgot to say they took a biopsy back in June when stent was fitted but come back inconclusive so Friday they say they've got to do the op because there so much inflammation around the kidney and these 3 new lumps are there so they take her down Friday 3 and half hours worse time of my life sitting waiting praying and then I get a phone call from one surgeon I tell him my signals not good all I can make out is after 2 hours they have to stop the op as mum was losing alot of blood and that it was all stuck to the liver and they couldn't do nothing so I stay at hospital aski g for someone to please tryi g and telling me if what I could try and make out was true panicking anyway its Sunday now and I've had nothing from a doctor surgeon or anything all the nurses keep saying is they don't no and will have to try and wait till Monday I'm so worried scared anxiety all over the places can't sleep eat drink angry why they left this for so long just changed drain due in hospital stay for bigger one but didn't seem to do much so now mum's there with a great big cut in so much pain and I don't no what to say do or what they say they got a biopsy due in the op so have to wait for histology report but it looks like cancer to them how long dose a histology report take and I just don't understand why it's been left for her to get more ill and more weak they new she was anemic and kept giving blood transfusion there's got to of been something on the ct scans that they must have seem to see that it's all stuck to the liver or how bad the swelling of that's what you would call it I don't no and wish they would just talk to me in normal language and bot doctor talk I feel so alone and trying to keep a brave face for mum and everyone I just wish someone could help me sorry I don't even no what question to ask I'm so scared thank you sorry if it all over the places
Hi Tippa82 and a warm welcome to the online community
It sounds like you and your mum have been going through an awful lot since her diagnosis and it's natural that there are lots of things you don't understand.
Your mum's cancer is a different kind to the one I had so I can't help with your questions but I noticed that no one from the group had come forward yet. Replying to you will push your post back to the top of the discussion list where it'll hopefully be seen by someone with the experience you need.
Another avenue to explore would be to speak to one of the nurses on the Macmillan Support Line. Whilst they don't have access to your mum's medical records they should be able to help you with any general questions you have about kidney cancer and treatment. It's free to call on 0808 808 0000 and they're available every day from 8am to 8pm.
While you're waiting for replies it would be great if you could pop something about your mum's diagnosis and treatment so far into your profile as it really helps others when answering or looking for someone with a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
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"Never regret a day in your life, good days give you happiness, bad days give you experience"
