Tumor and kidney removal- in shock

Yea, had a shock  diagnosis myself in May which showed  tumour in tubing just below my kidney, and kidney etc was removed within weeks. Feeling OK now, just had another scan for the Oncologist and waiting to hear what and how much chemo I need.

First month after op was worst, felt quite sore and took some time to get my appetite back.

Thank you so much for your reply. I feel really isolated and unable to talk to my family about how I feel, so just to hear how you have come through the last few months gives me comfort. So glad you are feeling ok- but its the waiting, just constantly waiting for results - it is something i shall have to come to terms with. How to cope and keep positive, i really don't know yet. I wish you all the best.

Yes,the waiting is the worse part. I waited a month after surgery to hear from my Consultant. Then he failed to organise another ct scan for Oncology and its taken a month to get my scan so now I have to wait again for an Oncology  appointment to hear what my further treatment will be. 

I found the best way to cope for me is focusing on my recovery. From the day after the op I started walking.  I walked the hospital corridors over and over each day, catheter bag in hand and continued walking each day since as well as focusing on my diet. Eating what I enjoy to help with initial loss of appetite, but lots of salads and fruit as well in increasing amounts since. Loving strawberries on cereals for breakfast at the moment.

I try to set myself some tasks each week at the same time being gentle and forgiving of myself when I don't always accomplish them. I find I'm beginning more and more to realise what is important and what doesn't really matter that much.

For myself I have faith that God will be with me as he has been, whatever the future holds.

I hope things work out well fir you in the coming days. The surgeons doctors and nurses are truly incredible a d will hp you l thet can. Have the tel number of the loc district nurse team to hand fir when you come home from surgery. They are brilliant , don't be afraid to ask them for help.

All the best.

Goodness your waiting period sounds so hard- i can just see so easily how they did not organise the appointments, seems so unfair.

Thank you so much for your practical suggestions as well, I will definitely think about all of these things. You have given be a boost today- just to know others are going through all the same things, I will need to be determined and try and keep positive.

I wish you well with your treatment, thanks again