New to the group - Feeling hopeless

FormerMember
FormerMember
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Hi all,

I am new here. My husband was diagnosed with kidney cancer in November 2020. His tumour in his right kidney was around 8cm and making him extremely unwell so his consultant said it had to go. He had his kidney removed in January this year. After the kidney was tested, he was told his cancer was rare and aggressive. In February he had a further scan to see if it had spread and of course it had to his lungs and liver with the next course of action to be immunotherapy which he started in February. Although we were coming to terms with everything and trying to shield our 6 year old son from it all, my husband was doing so well, he was eating lots, putting back on the stone and a half he had lost, we really thought things were looking well. In March, he started complaining about his leg but we thought it was muscle ache from the immunotherapy. He had a X-ray and we got told last week, it’s now in his hip. He ended up in hospital for 5 days due to pain in his arm and leg so another CT scan and MRI was done, it’s in the hip and also the arm. Now they want to give him a hip replacement and put a rod in him arm. He is in two minds to get it done, and I understand his reasons but at the moment he has hardly any mobility. It’s just awful to watch. 

I feel totally helpless, watching my once very strong husband disappear right in front of my eyes. I don’t know if it’s because I haven’t been able to go to any appointments with him but I didn’t know that his cancer was incurable. I found that out last week and I’ve really struggled. 

My husband doesn’t want to know his prognosis in terms of how long he has left and even though I completely understand, I also think it’s important to know. 

Has anyone else gone through his, I’m totally at a loss. Just trying to keep it together for my husband and sons sake. 

Thanks for reading 

  • Hi Kesha, I was diagnosed with renal cell carcinoma in September 20 which has spread to my bones and lungs and therefore incurable. You have come to the right site , everyone on here is very helpful and friendly. There are lots of people who have survived this a long time and there are lots of treatment options available. I have come to terms with my diagnosis and treat everyday as it comes. Yesterday I spent all day in bed as I just didn’t have the energy to do anything, but hopefully tomorrow will be a better day. There is also another group on here for incurable cancer where a lot of the people on that can give you more information. As I am quite new to this I am not as knowledgable as some and there are other people who can help you more. I know this is hard but all I can say is I have got used to it and I hope your husband does to. Chin up and try to think positive 

    love Rose xx

  • I am so sorry to hear this.  I am a patient not a partner, and your Husband is certainly much braver than I am.   I can understand that whilst your Husband may not want to know a prognosis you may feel very differently about this.  Is it at all possible you could speak to those caring for him? You won't both be going through the same feelings , especially not at the same time...but you both need to be listened to.  

    Glad to hear you have a little boy.  My Grandaughter will be 5 at the end of August. We are heavily involved in her care as the domestic situation is far from ideal.  No criticism of our Son who is a great Dad.   It is complicated.   I hope ypur Son is a comfort to you , I understand you are protecting him from the situatiin but that must be very hard for you.  I hope youbare at least having a good night's rest.  

    Hugs from me, xc

  • Dear Rose, 

    Another brave person.  I hope today is a better one for you.   I can't sleep so am awake with a coffee.....dumb choice but only half a cup!  

    Best Wishes to you,

    xxx