Hi,
Hubby is having his kidney removed in a couple of weeks after 5 years of immuno and chemo treatment, he is stage 4 and they may have to remove his spleen but won't know until they get in there.
My question is what can I expect in those first few weeks after surgery and how I can support him best. We've had the medical info leaflet, 3-6 months for recovery etc but any advice on what he's going to need from me in those first 2-4 weeks would be really helpful. I've booked the following week off work so I'm around but I can't be off forever with him and he's not known for doing what's best for himself. He's young for this diagnosis, just 50 years old and was fit but has spent most of the last 5 years sleeping so his fitness has declined dramatically.
Is it likely he'll still be bed bound for the first few weeks and should I expect to provide personal care? Am I more likely to need to keep nagging him to get up and move around? neither are an issue but I'd really like to be prepared to make sure I can do what's needed.
Hi, I had my right kidney removed back in 2021. I stayed in hospital for 5 days after the operation. The criteria for being discharged was being to get out of bed unaided, walk to the toilet and to go for a wee (after the catheter had been removed) and also being able to have a poop. Once I got home I had to go very steadily for a couple of weeks but during that time I was mobile, showered myself and do very light exercise.
About 2 weeks after being discharged I started to go back to light office work for a couple of hours a day and built up slowly.
I didn’t need to be nagged to be as mobile as I could as we were in the middle of lock down so I had no family visits etc as I I made it my business to recover as fast as possible as I wanted to see my family.
hope his op goes really well. Happy to answer any other questions if that would help him.
I had my left kidney removed in November and I live alone and had no help. I came home and had to be independent from the start. I had prepared meals and frozen them before my op so I could just heat meals in the microwave. I bought a small hot water heater so I could make hot drinks and not need to lift a kettle. I could wash and dress myself OK and just done everything slowly and carefully, so your hubby will be fine.
I am soon going in to have half my right kidney out and will do things myself again. I wish you hubby all the best.
I had an open radical nephrectomy 3 weeks ago. I need my husband to help me get up when I’m flat! Fine if I’m in a chair, but not yet able to get out of bed! He is also handy with getting the compression stockings on and administering the injections, but I’m pretty mobile. He’s going back to work once he’s helped me get out of bed. May be different if not open surgery as my scar is right across my tummy (28 staples!) …. Best wishes - day at a time x
Thank you all for your advice, it’s really appreciated and helpful to have some insight on what to expect. I’m so pleased to hear all your success stories and wish you all the best with ongoing recovery.
I have shared your experiences with hubby and it’s been good for him to hear it, it’s reassured him.
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