13cm by 13 cm mass found on ultrasound

Bless You.

Hello Kyle,

Welcome and sorry that you have had the diagnosis. There are excellent people on these forums at at MacMillan itself to give advice and support.

My tumour was 16x10x12cm - I had no idea it was there and got referred when I had visible blood in my urine. After a CT scan they gave me the bad news of kidney cancer and it looked to have spread but after an MRI scan it had not and was T3a, so I was scheduled for a radical open nephrectomy. The waiting for scan results feels like an eternity. Try not to use Dr Google as it can be all doom and gloom.

I had my right kidney and it's unwanted passenger removed 9 weeks ago. I went back to work yesterday on light duties and as I am classed as high-risk of re-occurrence I am now waiting to discuss having immunotherapy next month.

I hope you get the CT scan soon and then an op date to get that cancer removed. All the best.

Thanks for your message . I haven’t had any symptoms bar the pain right side which is what drove me to the doctors . I don’t go there lightly haha . I have had night sweats the last two nights but I don’t no if that’s due to anxiety more than anything as I’m now thinking about it and know there is something there . I do tend to feel a slight pain more now but again I think that’s because I’m thinking about it . The doctor has signed me off for 1 2 weeks but I actually feel fine to go to work but I do work in the nuclear industry so not sure if it’s wise all be it very safe . Ideally would like to work the next two weeks while waiting on these appointments just not sure if I’m allowed to . I’m glad yours is all removed and hope you make a good recovery. Thanks for taking the time to reach out to me it all helps 

It is a good idea to keep busy and have your mind occupied on other things while you wait. My employer did let me have 7 days off self-certified so I could get my head around it all, which was a good idea as I do deliveries, so driving and customer facing with my up and down emotions were not a good idea. Then I went back and worked for 3 weeks before the op and recovery.
I guess body scans are part and parcel of your line of work.
Keep us updated on when you get more news.

Welcome Kyle,

I am only new on here myself and have found it very helpful, although I was diagnosed May 23. One thing I've learnt is although we all have similar issues we are also all very different too so it's difficult to advise or give information. I had to go for an ultrasound due to my type 2 diabetes and I got a similar phone call a few hours later. My tumour was in excess of 8cm but appeared to be enclosed within the kidney. My op was in July 23 and I had full open to remove right kidney. My recovery from surgery took 10 -11weeks due to an infection mid way. This was now Sept 23 and I went straight into immunotherapy a week or so later. The most important thing while your waiting is to talk to people let them know how you are feeling. I also found my oncology nurses a great source of help. 

Best Wishes

Pete

Thanks for the message Pete there nice to receive . Yes I just want the actual diagnosis done so I can focus on getting better and the operation to be a success . Yours was a pretty quick time scale so I shall hope for similar . It’s crazy to think that when something like this is wrong we can’t just go get it fixed that day but then again we are also very lucky that it’s free 

Dear Kyle my kidney mass is a lot smaller than yours. I am offering support. My partial nephrectomy will be in the next few weeks. I have been assigned an urology nurse. I have been having reflexology as I was finding it difficult to cope. This forum is very supportive.

Thank you . I hope yours goes well . Yes I like to read peoples comments but I think it’s annoying my partner as I’m not putting my phone down . I will get there in the end just want to see my nurse and doctor and hear my plan of action. Until then I will probably end up just reading peoples stories 

No problem Kyle it is definitely good to chat on here as we all have a story and can relate in some way to each others issues. Yes I consider myself lucky with my timescales less than 2 months from diagnoses to surgery. I'm in Northern Ireland and although waiting lists for some medical procedures are horrendous everyone I have chatted to while at appointments etc seem to be similar so I hope wherever you are it is a similar situation and you are not waiting to long. Once your seen you should be allocated a specialist nurse over here they are called uro - oncology nurses, mine has been excellent and then after your op if treatment is on the cards you maybe will get a specialist cancer nurse, I have 2 of them. They are a great help, ring regularly and will guide you through any difficulties. 

Pete 

Hi EJ7861

Just out of curiosity I see you did reflexology, I was quite good through surgery and recovery phase and initial start of immunotherapy. My immunotherapy journey has not been easy and I am quite stressed and anxious, anxiety is something I have never suffered from. Did you find reflexology helpful, I'm waiting on counselling etc but would give anything a go in the meantime.

Pete