Hi how is everyone doing?

Good for you, I'm currently awaiting my surgery so will definitely take a leaf out of your book!

I think we try to keep strong for everyone else so we don’t  worry them or we are afraid of being a burden but we need to look after ourselves too  and know it’s ok to allow ourselves to have a wobble now and again. That’s why this community is so lovely cos we can say it as it is with people that understand.
Take care and good luck with your surgery …..and keep talking , we are all here for you xx

Hi Trish Yep I can definitely relate to the bloods/drugs/oncology cycle!  I planned to give up work.  I had the summer off as a trial and hated it.  Hubby retired recently and I felt I had no "me time".  The house was no longer my domain.  Like you, I realised I needed to fill my days with life again so I went out and arranged activities and went back to work for 3 days a week, in the office.  

I don't know why, but I don't seem to struggle with scanxiety.  I think my brain is wired differently.  Maybe it will come later.  

Hi I think we can all relate to this I had a year of monitoring and CT scans then the operation.

Moving forward a whole year after nephrectomy and immunotherapy with regular CT scans and blood tests.

I know that I am lucky and sometimes feel like it's a huge pressure not just on me but also my wife and support network ( some people have been amazing, some cannot handle the situation and to be perfectly honest I would support them if they went through this, as otherwise they may end up in a dark place)

After one of my recent scans it was noticed that I have swollen lymph nodes and growths in my lungs and throat. After a Ebus ( horrible) but necessary to take a biopsy I am on a course of steroids.

It never goes away my head has sometimes been in bits and with the help of my Macmillan nurse (s) greedy I know that it's helped almost as much as sharing my story with you wonderful people and the experiences of other necphomites.

I also have a good sing after my consultation..... please don't judge me

 I think everyone who posts on here should be enormously proud and it took me over a year of reading posts to actually pluck up the courage to post something.

So fingers crossed  and stay positive it helps even if you don't feel like it all of the time we can beat it or have a bloody good go trying as a lot of people are rooting for us.

Take care

Mike 

Hello Mike, it’s so lovely to hear from you and I know that your sharing will have helped lots of people. Just wondered if your singing repertoire has expanded or is it just S Club 7!

Love to you and your wife, Jules x

Hi Jules still S Club 7 I am afraid also a bit of 80,s cheesy pop  my wife is not impressed.

Also known as the biscuit man at Hospital as I always take in a box or two  I don't think they last too long.

Stay safe

Mike 

Hi Vanmanmikey,

 I like that idea of singing not sure I would be able to keep in tune without music, not sure what my oncologist would say hay-ho, I am happy you are doing well and the rest of the community, it is nice to hear from the old gang giving us a warm feeling dealing with our journeys stay safe Sandy xx

I am in a very good state at the moment thank heavens. But I am completely in awe of the courage and determination of many people here who are dealing with very serious illness. I really admire you so well done. It does make me wonder how I would cope if my situation gets worse. Good luck and God bless.